Hope this finds you well and as pain free as possible!
So for a while now I've been having problems with endo and my gynae's (yes I've gone through a few) don't seem to want to tell me what's going on. Well, I've found out a lot from the little bits they've given away and found out that not all is as peachy as they say it is.
To start off, I have had an MRI which said I have a retroflexed womb. This on it's own causes many problems (like not many results on google lol) I've found out that you have to have internal scans all the time to investigate as they cannot find it due to it being folded back on your spine and also if I were to get pregnant, I would have internal ultrasounds until 20 weeks gestation as the baby won't be seen until then which on average is when it flips forward. Also if my womb gets caught on my spine and doesn't flip it can cause miscarriage, still birth or stunted growth.
Also on the MRI they found out my womb was smaller than it should be by 1.5cm, making it 3.5cm instead of 5cm. I was told that it was because of the implant but no one else has said it's because of this and on the internet it is nowhere to be found. So I googled what causes a womb to be small and it's just because my womb didn't form properly in my mum's womb when she was pregnant with me. So there's no scary cause behind it BUT it means that my womb won't stretch enough for me to go to full gestation and I will give birth around 27 to 32 weeks, so about 6-8 months pregnant. Hopefully my womb is stretchy and this own't happen or at least I get to 32+ weeks.
Yet another thing is I've been struggling with really bad lower back pains radiating into my hips and thighs. I sometimes feel like I'm losing circulation around my calves and I've been told this is muscle related and nothing to do with endo. Again they were wrong as I've found out its caused by endo on the sciatic nerve. This is rare but quite common at the same time, I know that's contradicting but what I mean is, doctors don't diagnose it because they don't know it grows there so when they do, they say its rare to get it there but in actual fact alot of us have it on the sciatic nerve but don't get it diagnosed meaning it's quite common but doctors think its rare.
So ladies, if I were you, I'd mostly take what the doctors and gynae's say with a pinch of salt as I've always told them what's wrong with me and then they've had to reluctantly agree with me. You know you're bodies better than anyone else does, you're in sync with yourself and you know when you've got a cold, no one needs to tell you that so why do we always rely on doctors to tell us what, in our hearts, we know is true.
I hope this has helped at least a few of you beautiful ladies and that you can all find something that will help you soldier on.
Thanks for reading,