Same old same old

Hi all,

It's been a while since I've written on here but I've been reading on here and it really helps to know I'm not the only one struggling with this horrid disease.

Ended up in A&E again last night due to pain and bleeding from my bum and having started bleeding again after finishing my period a week ago.

Just spoken to my uncles girlfriend who has been through this and it really helped. It was so nice to talk to someone who I didn't have to explain everything to and who is no longer suffering with this and also nice to know that she bled like I am at the mo cuz it was really scary yesterday wen it started. I'm now takin amitriptiline and hoping that helps cuz I'm really not coping with the pain. She said takin a couple of alkaseltzers helped, has anyone else tried this?? I'm gonna get some and give it a go.

How many times did u guys end up goin into A&E b4 they decided to operate?? I'm seriously struggling to cope with all of this pain and am gettin to a point where I don't know where to turn ??

Danni x

3 Replies

  • Oh hun bless ya! I am glad you had someone to talk to who understood where you are coming from.

    I was admitted to hospital for pains but this was 6 months before I got diagnosed with endo so all they did was check for gall stones etc. It must be so frustrating for you keep going into a&e and not having any results.

    Can you go back to your GP if they any good? Are you still under the guidance of a gyno or do you perhaps need referring again to one? Sounds to me that it def needs investigating. Have you had a colonoscopy? MRI? Go to your GP and they may be able to refer you. That way can see if anything going on that causing it which may not be endo and then also can get a endo specialist to look into it.

    Sorry I am not much help. But I didn't want to not answer your blog as didn't want you to feel unlistened to or cared for. I hope the bleeding goes away for you soon and you have some better days ahead x

  • Thanks for replying, it really helps to know there's someone out there who cares and is willing to give advice. I'm waiting for another ultrasound scan cuz they want to see if my cyst has got bigger or smaller then will be goin back to see my consultant. This is all so frustrating!! Struggling to work at the mo even though it's only a part time job and so got bills comin out my ears and everyone hassling us for money. Guess I'm just gonna have to keep goin to A&E every time it gets really bad and hope that helps speed things up cuz rang my gp surgery today to get an appointment with my gp and he doesn't have any appointments till the last week in June but don't wanna see any other gp's cuz they have been a complete waste of time and space wen I've been to see the first available gp, at least I know my gp is good and helps, I'll just have to wait for a bit.

    I'm so sick of not bein able to sleep and struggling to eat cuz of the pain, I really don't know how much longer I can do this and how much more I can take. I've been trying everything I can think of and anything that anyone suggests but I just want a break from this constant pain and bleeding.

    I'm stuck in a nightmare and can't make it stop.

    Sorry for the rant, just struggling at the mo and feelin sorry for myself.

    Danni x

  • Hi, I'm sorry your suffering so badly, I know that about a month ago I was struggling to cope with the constant pains and after a very teary outburst after waiting over s week for doctors appointment she told me to try nortriptyline. It took a week or more to feel any benifit but I'm sure has helped. Although the pains still there it seemed to be manageable and I did feel more able to cope. I've had bad pains for last 2 days with stabbing pains and my leg and hip is bad too but its the week before I'm due on so allways worse and I'm normally limping badly but it doesn't seem quite so bad as it has been. I have to work so can't have anything that makes me groggy and these don't so maybe worth a try?

    Also having to wait so long is a nightmare when you need help asap so the last time my surgery told me there was a long wait I was advised to call every morning as soon as they opened as they reserve emergency appointments so if not used you may get one or they may get a cancellation and get in sooner. It maybe worth asking if they do this. I hope you get some help soon xx

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