4 years ago I began having kidney infections and after having 1 every other weeks for 12 months, constantly having antibiotics thrown my way, I was finally referred to see a urologist after having, flow tests, ultrasound scans, credit scans nothing being found to be the cause, I was put on 6month low dose antibiotics and antibiotics to take after sexual intercourse. These didn't work.
On regular visits to docs I explained, I was having difficulty and pain when passing water and opening my bowels. I was constantly feeling sick. Had lost 3 stone in 6months. Constant pain in left side of my abdomen, pelvis and back. I was given paracetomal, ibuprofen, gabapentin and tramadol to ease my chronic pain. Am also feeling so weak.
I was then referred for a second opinion with a top urologist at Cardiff university hospital. He decided due to the extent and prolonged infections, I should try a relatively new and trial treatment which involved, putting a catheter in daily and injecting antibiotics in to my bladder daily. This worked for a period of time, slowing down the amount I had but then the infections came back even worse than before.
I was referred to see a gynaecologist in 2011 as the urology team could not come up with any other cure for me. I hadn't had periods for 2yrs as had been put on ceracette pill due to all the antibiotics which had stopped my periods. But when I did have periods, they were extremely painful and heavy. After seeing the gynaecology consultant, he was 100% convinced I did NOT have endometriosis but just to rule it out offered me a laparoscopy.I had this done in Oct 2011 and doctors were extremely surprised to discover I did in fact have endo. I was told my rectal tube was stuck to my back wall. My left vary wad stuck to my pelvic wall, my womb, kidneys and bladder had also been affected. I was as confused and shocked as the docs as all the scans I had nothing showed up, I was constantly looked upon my docs as I was making up the pain to the point I started to believe it was in my head. I was put on to prostap hormone injections for 6 months and livial but after 3 doses I began to have an allergic reaction in form of a skin rash and also started to have periods as soon as I stopped the ceracette. The periods are lasting for about 12days and are so painful and draining. I got changed to a zodalex implant at the end of last month still having periods and also the kidney infections are still as bad too. So don't think that is working either. I am not supposed to be seeing my consultant until April but seriously think I should be seeing him sooner.
Sorry for such a long story.
Hope I can have some light shed on this sometime soon.