Anyone had any luck getting diagnosis/treatment for Craniocervical instability

[Taima]

I was referred for an upright MRI by my rheumatologist last June but my Gp flat out refuses to make an individual funding request for me to have it and apparent CT scan came back normal. I can literally put my finger in the gaps between my vertebrae and feel it close/open when lifting my head when they are subluxated, and of course the gap closes when I lay down because it’s gravity making my head fall off…. They just gave me diazepam!!

Nobody would even lift my head for me. If they’re so convinced that none of my vertebrae are sublimating at all then why are they scared to move my head and just leave me flopped over unable to see/breathe/eat properly then wonder why Iam going nuts in agony for being like that for days to weeks at a time.

First picture was taken after the dog shook a toy I was holding too hard and the second one was after a sneeze where something else very distinctly went ‘clunk’ and out of place. I am still in agony and have to wait 3 weeks for another lying down scan. I’m scared my GP wants to talk to me for trying to ‘go behind her back’ by going to Urgent Cares and getting the CT scan and the radiographer has probably written to her telling her that I’m a hypochondriac and a demanding/difficult patient. All he wanted to do was shove diazepam down my throat but wouldn’t even tilt my head up so I could beeping see my own scan!