Hello all, I'm new here, I've never seen these forums before, it came up on google and you all seemed so nice and knowledgeable too, so here I am.
So, it's a bit of a long story.
I used to be a dancer. I've just turned 30.
For years now I have been suffering with a lot of pain in my joints and muscles, it started in my back, but spread to most of my body.
I also have had terrible fatigue, I get exhausted very easily and if I do anything, say like going out for the day, I'm in so much pain and fatigue.
I got diagnosed with fibro and CFS. Anything I ever had was put down to that all the time.
I have suffered with IBS and, well quite frankly some awful bowel troubles for years.
I have also suffered with a lot of dizziness and fainting, in as much as I pass out all of a sudden.
About 2009 I got this really severe pain in my shoulder radiating to my arm, it was so bad when I lifted my arm over my head as I was taking my top off I screamed. I then couldn't move my arm for the pain. This comes back here and there. No doctor examined it, all I got was pain killers.
It was a physio who was later treating me for general pain who said, 'oh it doesn't feel like your muscles and ligaments are attached correctly, they are not supporting the joint there'
Anyway, I have been a bit of a pass the parcel of a patient, referred here, there everywhere and not much done for me in all honesty.
The other week I was going to another physio for knee pain, swelling and it giving away. Anyway, she asked what else I have and I said general pain and she asked if it was due to my hypermobility. I said I wasn't sure if I even had it and she said by my general appearance, I was typical of someone who had it.
Anyway, she did the Beighton test and I was 6/9 where she tested.
She told me to look it up and I have and clearly it does fit the symptoms.
I also have stretchy skin, especially on the neck, but on my arms and hands too.
She sent a letter to my GP, I have to see them next week, in it she suggested I was seen by someone who could help with this.
My question was, does it seem to fit with EDS? I'm thinking it seems to be the umbrella over the things I have been suffering with for an awful long time.
Thank you, sorry the long post!