Please excuse the length of this post but I’m desperately seeking answers.
Back in 2015 I was trying on a pair of trousers and my left ankle gave way as I lifted my right leg. The pain came completely out of the blue like a bolt of lightening and was excruciating! I was convinced I broken my ankle although I knew how ridiculous it sounded when comparing the method of injury.
I went to the hospital and had an x ray and was told everything was fine it was just a sprain. I was in bed for 8 weeks literally unable to put any weigh on it, with everyone reminding me it was just a sprain and I needed to get in with it. After 8 weeks I went back to my Doctor insisting there was something wrong because I was still in agony but he insisted It was just a bad sprain.
At this time I was due an appointment with an Eds specialist to confirm my diagnosis of Eds. I felt the injury must be Eds related and was sure he’d know what was wrong. He sent me for more x rays and declared it was just a symptom of Eds and nothing more.
By 12 weeks I was still in agony when trying to walk. I’d purchased a space boot of amazon to help me get around. I was in bed feeling sorry for myself and suddenly realised I couldn’t move my toes or bend my ankle side to side or up and down. I was terrified!
The next day I went back to the doctor insisting there had to be something they were missing. I was then diagnosed with Peroneal nerve damage (drop foot) the Doctor referred me to a physio and eventually I was able to move my foot again but the whole experience was terrifying.
Since that incident 2 years ago my ankle/ foot hasn’t recovered and each time I’ve seen my doctors or consultants I’ve raised the issue of the problem with my foot but they’ve basically ignored my protests and insisted I’ve had the necessary tests and there’s nothing wrong.
I’m only able to hobble around for a very short period of time before I’m in extreme pain and need to rest and ice my foot. After a couple of days I’m able to repeat the process and that’s been my life for the last two years.
I mentioned to my rheumatologist that the only outstanding issue relating to my health that I couldn’t get any answers for was my foot. I told her the whole story and she arranged an MRI. She agreed there was definitely something more going on and was confused why no one had done an MRI and why the issue had dragged on for so long. She arranged a scan and referred me to the podiatry unit, she believed that the foot specialists at this unit were more likely to solve the riddle of my foot.
Yesterday I finally got the results of my scan. I have two serious fractures and a ruptured ligament. He said the injury is extremely unusual The consultant says he doesn’t understand how I could have such serious injuries from the method of injury I described he insists there must have been some other type of injury prior to the one I describe. He is at a loss what to do and is going to arrange a case meeting with the consultants at the hospital to discuss the next steps. He said from a consultants point of view my injury was exciting in the sense that because it’s so unusual it will be something they can learn from.
Has anyone else had a serious injury which has been caused by a low trauma incident? I’ve lost two years of my life to this injury and I’ve suffered the looks and the comments from all the people who thought I was making it up or exaggerating the injury. If this is something other Eds suffers have knowledge or experience of I would be grateful for their stories.