I am making a plea to anyone who has both EDS and endometriosis if they can shed any light on what treatment options there may be...
I have EDS hypermobility type diagnosed 2 years ago, it was picked up on by my gynaecologist who couldn't attribute all my symptoms to my endometriosis and sent me of to see the rheumatologist who confirmed hypermobility.
At first I tried cerazette which is a progesterone based pill and my body seemed to go into shut down and did not enjoy it at all! I have been told by rheumatology to avoid progesterone pills and the mirena coil. I also had a laparoscopy last year which removed some endometriosis and seemed to help.
However last week I was taken into hospital with gynae problems and it now seems my endo has spread to bowel and stomach I am at a loss to know what to do!
Any help or just to know of someone else who has been diagnosed with both would be very comforting.