AKI: Hello Wondered if anyone on here... - Early CKD Support

Early CKD Support

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AKI

Mary-intussuception profile image

Hello

Wondered if anyone on here has suffered Acute Kidney Injury and recovered well?

Private message me if preferred please .

Thank you.

Edit:

I have put another post on here.

Thank you.

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Mary-intussuception profile image
Mary-intussuception
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Netty321 profile image
Netty321

Hi, yes, bit of a shock as I was referred by Blood Donation as they refused my blood a couple of times after years of giving due to the drop in Hb. I had a comprehensive blood test via the GP & it was flagged as AKI with a Gfr of 38 and CKD 3B. A referral was made to urology but the hospital kept coming up 'no appointments available' for a couple of months so I found this link & read through the comments. I changed my diet & started exercising & losing weight (I had been on meds for fibromyalgia & Gout later on). I paid to see a urologist eventually who said it wasn't a urological problem & I needed to be referred to Nephrology. I had the same issues at hospital as before, 'no appointments available' for months, both times being bumped out of the referral system. Luckily I had followed advice on here as I had none even from the GP thanks to Lockdown!? I did request comprehensive blood tests at 3 monthly intervals to monitor stats myself. I have not been monitored at all by GP etc even after a collapse & A&E admission where I was told I had blood in my urine as well as the eGfr stats - sent off to be monitored by GP. Hey ho, I have lost 2 1/2 stone & my filtration rate stats were 38 39 38 41 & finally 46 in December, placing me as CKD 3A. I'm proud to have achieved this without medical assistance but help would have reduced the stress & anxiety during these crappy times! It may well have been the meds I was taking for fibro that caused the issues as I know of no other reason for this AKI. Good luck!

Netty321 profile image
Netty321 in reply to Netty321

BTW I'm in UK and I'm 59, just reading previous comments which ask for this info! ;)

Mary-intussuception profile image
Mary-intussuception in reply to Netty321

Thank you so much for your replies Netty. I will send you a pm if that's OK. So glad to hear you are getting better.

Our experience with Urology hasn't been pleasant.

I didn't ask for your personal info though ?

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