Chronic debilitating kidney infections... Help!

[Stace30]

Hi there

I have chronic debilitating kidney infections

Often hospitalised

Negative cultures

And my recent hospital stay showed negative bloods

I am still at home recovering and have read a lot on people with infections but negative tests

I have had ultrasounds and will be having a biochemical renal scan this week

I constantly argue to get antibiotics and this time a 7 day course didn’t treat it :/

Is that because I carried on working etc and didn’t rest whilst taking them :/?

I have had this for a long time and my urologist just wants me to keep having dilation under anaesthetic or a new thing tested on animals called cystitat :/

I am desperate for help and information and feel I am bein let down and wondered if your organisation is something I could get help/information/advice from or if you could point me in the right direction

Thank you

[L4u4laith]

Hi stace30

You don’t give your age why l mention this when l was young with young family had lots of debiliting infections and had to be hospitalised however l had my right kidney removed when l was 41 you say you worked while taking your antibiotics try to rest when you are on them and think positive things have only got better for kidney problems today’ l know it’s dificult to rest l am in stage 3 kidney failure but l am 78 now and still get infection but I’m doctor is great so take and things will improve and bless you

L4ur4laith

[Stace30 in reply to L4u4laith]

Hi there

Thank you for your reply

I am 33 now

I had meningitis and sepsis two yrs ago and suffer with so many side effects and try to work but I struggle I can’t live a life/do things and work

My kidneys started bout at 20yrs old all of a sudden both gave seering pain I was keeled over and sick and hospital said I must eat to much junk food and had issues ever since and there even worse since meningitis, I’m really scared of something else happening down the line because it’s not sorted; I’m on my 4th week with strong kidney pain, 2weeks of antibiotics and two days in hosp with antibiotics I’m at home now and just don’t know what’s normal anymore and what I’m to do next, ignore the pain, ask for more antibiotics and rest more I don’t know.

What did they say caused ur issues?

Sorry also to hear all ur problems!!!🤗😢

[L4u4laith in reply to Stace30]

So sorry to hear all your problems thought it was just kidney infection you were suffering with l wish you well bless you 😢🤗

[Stace30 in reply to L4u4laith]

Hi

I have a lot of side effects but the main thing that just keeps getting me & debilitating me is the kidney infections yes.

Did they ever say about the problems or causes with your kidneys? L4u4laith 🤗