Thoughts please?Im confused

[Sno125patrol]

I have had scarred kidneys since I was in my teens. I’m now 59 years old. Had a blood test to check my kidney function and my egfr is 51. I’m not diabetic , I have normal blood pressure and no other health issues. My GP has said my bloods are ok , no issues with potassium etc. I asked her if I should change my diet by reducing protein and potassium and she said on no account to do this. Just keep hydrated, eat healthily and drink responsibly. So why do all these websites say to alter your diet to plant based etc. she said it’s all a load of rubbish and to ignore the websites. I’m so confused I do t know what to do for the best.

[orangecity41]

I was diagnosed at CKD level 3b. I was placed on CKD diet based on other bloodwork results for phosphorus, sodium, potassium, and protein. Maybe ask your doctor to continue monitoring your bloodwork for these factors.

[Darlenia in reply to orangecity41]

Great advice. Doctors check your labs before asking their patients to modify their diet. Good idea to have labs done regularly. Please don't do anything without a doctor's direction. I'm a gal who took took sodium out of her diet without consulting with anyone and wound up passed out in public. The renal diet manipulates very, very important electrolytes and proteins needed for proper body functioning.

[orangecity41 in reply to Darlenia]

So true. I track my diet and make sure getting the amount required for potassium, phosphorus, sodium and protein.

[purple-1974]

Hi Sno125patrol

As others have said it’s not until you have regular blood work done, that there is any need to consider dietary changes. A regular healthy balanced diet is all that’s required for you, scarring is caused by frequent infections, keeping hydrated to the recommended maximum of 8 glasses of water a day and just staying on top of your health and wellness is important

[Steve507]

At 65 years,, my egfr was 60 last year According to scans, my right kidney is a pile of cysts with 33 percent function and left about 66. Wonder if kidney cysts disease is an inherited thing? Would like to learn more about my condition! Open to suggestions. Thanks

[Darlenia in reply to Steve507]

Just a quick note - your question is kinda buried in this thread here. You may want to submit your question as a separate subject under your own name. Many in the group have cystic kidney disease and will very likely respond to you when they see your your topic come in on their newsfeed. You really deserve some good answers to your question.

[Sno125patrol in reply to Darlenia]

how did that happen ? I thought this site was for ckd of all types ? How do I get it into the main thread?

[Darlenia in reply to Sno125patrol]

I would simply click on "My Feed" which is generally located at the top left of the screen. Following that, scroll to the very top and a box should be there for you to submit your "new" question. As you do that, a drop down list usually presents with a number of communities you check for it to go to. I think you'll probably find that quite a few people will comment on your question. I hope that happens for you.

[Sno125patrol in reply to Darlenia]

thank you Darlenia 😊

[lowraind]

Dr. Google is not the best place to look for advice. Mayo Clinic, Cleveland Clinic and Johns Hopkins Hospital websites have been helpful to me, as have:

• Renal Support Network provides many support and advocacy services including a phone support line.

• AAKP is a comprehensive resource focusing on the quality of life for kidney patients through education, advocacy, patient engagement and the fostering of patient communities.

• National Kidney Foundation provides a portal for patients too.