Hi All, I was diagnosed with Cervical Dystonia in March. I feel I've had dystonia maybe since I was a teenager (I'm 39 years old) so cried with relief when I was finally diagnosed. Doctors always put it down to anxiety - I just felt like a weirdo for years and years, and like it was my fault. It was a relief to finally be diagnosed; as soon as I discovered the disorder and read about, I knew that was what I had. I was relieved to realise there are people out there like me!! It's such a difficult thing to explain to people (although I still feel strange telling people - I think I'm that used to trying to hide it!), and I struggle inside every day but keep going. This is the first time I have spoken to others with the disorder.
I started Botox injections last week but haven't had any relief yet, I need to be patient I suppose! Just wondering if anyone finds exercise helps? I used to exercise a lot (running and gym) but am finding it too painful at the moment and my neck seems more spasmodic afterwards. I also worry I could be making things worse longer term, what do you think? Also if anyone has taken vitamins etc. thats helped, please let me know.