I have cervical dystonia have had this since 1990. Took them 3 years to diagnose me. My head was everywhere but then started Botox and helped to lift head up but the tremor was bad. Anyway now I have hand dystonia so am unable to write properly tremor in my hand has made me feel awful as unable to fill out forms my fingers ache too and had carpel tunnel done in same hand. I have not applied for pip as cannot handle downers. Have been in and out of deep depression been seeing my Dr every week. Live on my own. And get very low and disinterested in things which I guess is how we feel. I have now been getting pain in my right leg more of an ache from groin to ankle and it's horrible.
Anyway I guess we just get on with it.