Post-stroke neurogenic bladder

[MacDhomhnaill]

Have any of you stroke survivors had neurogenic bladder? I had a stroke 2 years ago and I am still recovering. Unfortunately, this is one problem that is not yet improving. None of my doctors can help me. They tell me I have to wait for my brain to connect, and they have no other ideas. Thank you!

[Kirk5w7]

Hi,

I didnt know it had a name.

A lot of us on here im sure live with this.

I assumed my problems came with the territory and they obviously do. I have an ABI caused by encephalitis.

I had to retrain my bladder myself. I need access to a toilet every 2 hours thats the maximum i can hold urine during the day and wear a pad daily in case of accidents because i cant get to the toilet in time.

Strangely i can hold it all night unless i wake and then i must go immediately.

I also monitor my fluid intake, restricting it severely if there is no access to bathroom facilities.

Having toilet trained 4 children i used the same way with myself , not something I expected to have to do. At a push i can manage around 6 hours during the day but i cannot take in any liquid during that time to achieve this.

I know the difficulties you are facing and i feel for you, hopefully you can help things along, i wouldnt be waiting for my brain to connect i hope you are trying to help it.

Janet x

[MacDhomhnaill in reply to Kirk5w7]

Thank you. All great ideas! I use a PEMF (pulsed electro magnetic frequency) mat and that is supposed to help with incontinence but I cannot tell a difference. I am pursuing other options as well, and if any are successful, I will post. Thanks again!

[moo196 in reply to Kirk5w7]

I'm not sure that I'd ever last 6 hours during the day and would think that isn't normal anyway. I'd expect to need a wee every couple of hours come what may.... And friends with no complicated medical issues do the same.

Doesn't restricting fluid intake make one more dehydrated and risk bladder/kidney issues...?

As long as I can last overnight I'm not worried about needing a wee several times a day.

[Kirk5w7 in reply to moo196]

It does no harm once in a while. It’s not the needing a wee several times a day, it’s the fact that I can’t control my bladder at times, if it decides it’s going to empty itself there’s nothing I can do to stop it.

So, the best way to control it is by ensuring it never becomes too full.

[Tucson]

I didn't know it had a name either but it's one of the most common post stroke symptoms, mine has improved but not cured but I've had 3 strokes of varying degrees so 1 step forward etc.

I can last all night too but need to go on waking, I don't restrict my fluid intake as I'm too wary of another stroke even though mine are caused by an auto immune condition. Throughout the day I'm generally ok but when I need to go I get very little warning so need to be close to a loo. Strangely for me any exertion and I need the loo straight away. I don't think I will improve any further tbh. I haven't found Doctors to be of any use with anything and if I hadn't pushed myself to do things I wouldn't be half as able as I currently am.

[Maylin]

Not certain what the symptoms are orbif i have the problem Ut after my stoke i seem to hsve a sort of nighttime incontinence fortunately inwake up before it is too late but as this is the only lasting effect of my stroke i count myself very lucky

[Brenda1946]

I had a stroke in 2014, fell had hip pined and dislocated my shoulder. I still have limited movement down the left side but keep trying and sometimes i can do a little more with my left but don't trust it completly

[Worzel41]

ask to a continence nurse - they can be very helpful x