Carnivore and Nicotine update 5 months

[38yroldmale]

Today is 6 years dx. Crappy timing. Quite a journey. I finally feel hope.

I’ve been on the carnivore diet for the last 5 months. I’ve been feeling better and better until about 3 weeks ago. I was so disappointed because it had basically cured my non motor symptoms. I was way down. But what I realized the same time I started feeling worse was after I bought some cbd/THC gummies that had sugar. It was knocking me out of ketosis and inflammation came roaring back.

To me, it’s a miracle. My PD affects my gait the most which is correlated with anxiety and depression. They are my worst symptoms by far. This diet along with breath work, exercise red light, stress reduction and cold exposure. I feel like I have my life back. I am not depressed and look forward to my life.

Nicotine seems to work better while doing carnivore. I think it’s because im calm and have positive thoughts. To me, it extenuates whatever you’re feeling. It doesn’t work when im stressed. Also less is more. It can work as a rescue if your symptoms are bugging you. Also, it seems to be better if you aren’t hungry. I’m still experimenting. Patches make me overstimulated it seems.

[38yroldmale]

it’s hard to describe. Foot drop, not as much Parkinson’s but made worse by PD. No neurologist said it’s typical of PD

[pdpatient in reply to 38yroldmale]

38yroldmale does your gait resemble a stepping gait, that looks like you're stepping over a log?

[38yroldmale in reply to pdpatient]

That a pretty accurate description. It’s weird.

[pdpatient in reply to 38yroldmale]

38yroldmale Unfortunately, I had it also when I got diagnosed with Parkinson's at age 48. It is a side effect of Levodopa peculiar to YOPD patients exclusively. I am 60 now and the problem is almost gone. It was weird, uncomfortable and embarrassing because I was still working.

The problem used to go away after missing a Levodopa dose or two. I learned to identify the pattern from a feature by an Australian newspaper about a YOPD patient. Have you shown the gait to your MDS?

[pdpatient in reply to pdpatient]

38yroldmale . Here is the article that I had read about the stepping gait :

unsw.edu.au/newsroom/news/2...

[38yroldmale]

c/l, encapatone, mao-b inhibitor.

[india245]

thank you for sharing. Can I ask where on your body you use the red light, how many days per week and for how long?

[Smittybear7 in reply to india245]

Following

[38yroldmale in reply to india245]

I use the coronet 2 times a day every other day and a cold laser pointed at the back of my head and on my abdomen the other day

[park_bear]

Too much levodopa makes my leg stiff and unwalkable. I adjust my levodopa dosage accordingly.

[freefallmode]

Do you eat fish/seafood too, how often? Eggs and dairy?

[38yroldmale in reply to freefallmode]

Lots of eggs. Seafood is great for the carnivore diet but I don’t care for it.

[38yroldmale in reply to 38yroldmale]

I do eat dairy, much easier to get enough fat but some say it causes inflammation so I might get off it?

[Edge999]

this is great to hear! Im 125 days ketovore and all my non motor symptoms are much better. Unfortunately tremor is my most dominant symptom and it’s about the same . I still have hope though and will keep going

[JayPwP in reply to Edge999]

Are you still on Sinemet? Doesn't it help with the tremors?

[Edge999 in reply to JayPwP]

Im barely taking sinemet. For example Ive had 1 tablet the last 4 days. But it never really helped with tremors

[TenaciousBlue]

I’m so glad to hear this. I’ve been diagnosed for nine and I immediately cut out processed foods. Now I’ve gone a step further as of at least a month ago and I have zero carbs and also zero processed foods; no chemicals, no preservatives, no food dyes, etc. maybe it’s just early for me, but I have not progressed since diagnosis.

Thank you for sharing and I truly look forward to your continued updates.

[SAGoodman]

Thanks for the update! I've been keto for 2 yrs, also use 4mg nicotine. Still have stiffness and tremor, but stress definitely decides how much!

[PDsux_10 in reply to SAGoodman]

Hi, Do you use nicotine patches?How do they help? Thanks Mel

[SAGoodman in reply to PDsux_10]

I actually use the On! Brand in 4mg pouches. The main improvement i see is a reduction in tremor, but only a reduction. Seems to have more mental clarity as well.

[PDsux_10 in reply to SAGoodman]

Ok thank you. I don't that have pouches in Australia, but I'm definitely gonna check. Cheers Mel

[Jornette]

How about your weight? My husband with PD is very thin and I have considered carnivore, but am worried about his weight. How much to eat/day? Good to hear that eggs and dairy can be eaten. We live in Norway where meat is expensive. He does not take any meds, he worries about the side effects.

[pdpatient in reply to Jornette]

 Jornette . Is it possible to give your husband, a weight gain shake? An American company called Abbott makes it. I will post a link to their website if you can't find it in Norway or on Amazon. It's incredibly effective.

You can try calling them and find out how to get it.

PHARMACEUTICALS AND DIAGNOSTICS

Ensure Plus is the product

Abbott Norge AS

P.O. Box 1

N-1330 Fornebu, Norway

Telephone: [phone]

Facsimile: (47) 671 13110

[Jornette in reply to pdpatient]

Thanks, I will take a look.

[38yroldmale in reply to Jornette]

I am very lean as well. It’s going to sound crazy but I will eat butter sometimes. Fat is your friend on carnivore. Cholesterol in PD patients can be low, mine was way too low before starting this diet. The diet helps to raise your levels which is a good thing. The longer I am on this diet, the more I prioritize fat. Tallow and ghee are also great.

[Jornette in reply to 38yroldmale]

Maybe we should give carnivore a try.

[38yroldmale in reply to Jornette]

You should, it’s bumpy at first. You’ll thank me later.

[Balahanda]

where do you get red light therapy

[38yroldmale in reply to Balahanda]

wellred.com.au

coldlasers.org/?srsltid=Afm...

This is what I use

[pad99999]

Hello, I was diagnosed 9 years ago, my first problem was walking, then hand tremors and other symptoms started, and in the last two years, due to frequent constipation, I have lost a lot of weight and my walking has become impaired, and I walk forward on my paws quickly and I walk with short steps clinging to the ground (festination gait) during this time all the doctors said it was Parkinson's, but now another doctor told me for the first time that these symptoms are vascular Parkinson's and asked me to take an MRI. I take two Sinmet 50 tablets daily with Mucuna

[Hidden]

When you say you use 4mg of nicotine is that in gum form. Awhile back I was an extremely light smoker so my concern is becoming addicted. What has your experience been with nicotine? Any addiction issues?

[38yroldmale in reply to Hidden]

I’ve never used tobacco so I can’t say. I know I’m not addicted. Let me ask a question, are you not addicted to your PD meds? I actually went cold turkey early on in my dx and almost died from neuro malignant syndrome.

[Hidden]

Assuming I am

[Bracondale]

So good to hear of all the things that have helped your PD! (I've not got PD but a keto diet has helped my symptoms as it decreases inflammation. Managing stress also helps as it lessens mast cell degranulation/histamine release and inflammation). I was interested to see that you have a strong family history of PD. I'm sure that you will have thought of this already but I just wondered whether looking into methylation SNPs (single nucleotide polymorphisms / genetic variations) might be helpful (in the context of neurotransmitter production). Dr Ben Lynch's work in this field may be informative ie how to support poorly performing enzymes nutritionally.