I am now a B1 Believer :-) +* 6/21/22 da... - Cure Parkinson's

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I am now a B1 Believer :-) +* 6/21/22 day 36 of taking TTDF:

Gcf51 profile image
27 Replies

*** I ended up with High Blood Pressure taking TTFD. I no longer take TTFD. Based on my experience, I would not recommend TTFD. ***

I am at 16.65mg* B1 as 1/2 of 50mg TTDF (dose for last 9days), I am now back 2-1/2 C/L twice daily as before TTDF, My digestive system is better than my normal (I’m eating more and having bowel movement twice a day (3days)), I have been on back on my mood stabilizers for 6days and should be near stable on them, My energy is still high. I have not been following B1 Protocol.

There is a drug Fursultiamine that’s FDA approved (see Bolt_Upright’s excellent comments: healthunlocked.com/cure-par... ). FDA requires drugs not be supplements (TTDF has been modified with the addition of HCL, I do not known which is the more powerful B1). The MJFF has no interest in B1, maybe they will find interest in the drug.

* TTFD is 2/3's B1...

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Gcf51
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27 Replies
Gcf51 profile image
Gcf51

Dap1948 First warned me at like day 2 and I let go on for 8 more days.

healthunlocked.com/cure-par...

+* Caution: The contents of my cap taste awful, I split in half my 50mg into 00caps to get pass my taste buds.

Is there a way to get pic a bottom of a post. I thought it would be like a comment.

Gcf51 profile image
Gcf51

email to MJFF

Email to MJFF
dadcor profile image
dadcor

Could you please explain what exactly 2-1/2 C/L means..??

JCRO profile image
JCRO in reply to dadcor

Carbidopa/Levadopa.

Gcf51 profile image
Gcf51 in reply to dadcor

2-1/2 tab of Carbidopa/Levodopa twice daily.

jaybar profile image
jaybar in reply to Gcf51

I wish there was a dictionary of all the letter abbreviations starting with pwp (people with Parkinson’s???). TTDF? And so on. I’m new to Parkinson’s.

Gcf51 profile image
Gcf51 in reply to jaybar

Me too.... Is PwP and PWP the same "People with Parkinson's" and doesn't PD cover that.

Solvang53 profile image
Solvang53

the FDA and CDC are completely controlled by big pharma...the COVID vaxxines are neither safe nor effective...that includes ALL vaxxines....sorry to go off topic but its so damn important to know the truth...childrenshealthdefense.org/...

Gcf51 profile image
Gcf51 in reply to Solvang53

Sorry, yes they are concerned, but controlled is too strong of a word.

Solvang53 profile image
Solvang53 in reply to Gcf51

they are completely controlled by big pharma...its a revolving door from working at the CDC and then taking a job at a big pharma company and vice versa...I have researched this topic for years....read Robert Kennedy's book the real Anthony Fauci for all the evidence you will ever need...the media hides their crimes because big pharma spends billions a year on advertising so they too...along with congress...are bought and paid for shills....childrenshealthdefense.org/...

Gcf51 profile image
Gcf51 in reply to Solvang53

I am praying your negative comments doesn't get this whole post deleted.

Solvang53 profile image
Solvang53 in reply to Gcf51

if my factual comments get this banned it will only prove my point...and if praying worked you wouldnt be on this site to begin with...have a great day

Gcf51 profile image
Gcf51 in reply to Solvang53

Sorry, you feel your statement is fact. I hope this ends the conversation. God Bless the USA.

CaseyInsights profile image
CaseyInsights

Be thankful that TTDF works for you. My wife tried it with no such luck.

I know you are convinced you have made a major find but it is just one of those things.

I would say n=1

👍

Gcf51 profile image
Gcf51 in reply to CaseyInsights

Yes n1, non placebo, Bipolar tendency with a Bad Doctor as a patient. Needs very much some formal research.

Gcf51 profile image
Gcf51 in reply to CaseyInsights

How much and for how long did your wife try TTDF?

CaseyInsights profile image
CaseyInsights in reply to Gcf51

Did it for two months in early 2021 for 60 days.

Ecological Formulas Allithiamine Vitamin B1 50 Mg, White, 60 Count.

Largely use Befotiamine - 300 mg.

Recently have done 100 mg Thiamine Mononitrate sublingual pills. Will stay with this for a while. On second 100 pill bottle.

Feel I am getting some results here. Taking a longer look at this molecule.

Gcf51 profile image
Gcf51 in reply to CaseyInsights

Befotiamine being fat soluble maybe a little tricky, I would stay with sublingual I think. But I'm not a doctor.

CaseyInsights profile image
CaseyInsights in reply to Gcf51

Befotiamine being fat soluble maybe a little tricky…

Not too sure where observations such as yours came from, but I have seen it before.

‘Here, we report that long-term administration of benfotiamine improved the cognitive ability of patients with AD.

Five patients with mild to moderate AD received oral benfotiamine (300 mg daily) over 18 months. ‘

ncbi.nlm.nih.gov/pmc/articl...

The study did not point to any adverse events. I also use the same brand as in the study.

Gcf51 profile image
Gcf51 in reply to CaseyInsights

So there is a Group on HU that takes B1 for mental clarity.

MarionP profile image
MarionP

Sorry, what was it that made you a believer, I couldn't quite track you on that.

Gcf51 profile image
Gcf51 in reply to MarionP

I way I feel on TTDF and improvements in PD symptoms. I may not ever get back to my earlier days of taking TTDF ("I was wondering if I ever had PD or was I just B1 deficient", I believe that was mania and placebo).

JayPwP profile image
JayPwP

Why do you keep making new posts on the same subject? I feel all your updates in a single thread would be easier for others to reference and follow.

Gcf51 profile image
Gcf51

That is a great question, when is it better to start a new thread or add a comment. I will reevaluate my choice.

mauigirl18 profile image
mauigirl18

Is it TTFD or TTDF and why 2 1/2 CL 2x daily and not 2 whole 2x daily?

Gcf51 profile image
Gcf51

It is TTFD as in Funny Disulf... (Seems it it really Furry). The 2-1/2 C/L twice a day is what I was taking before starting TTFD, I am trying to follow B1 protocols as I understand them. I will try to reduce once stable on B1 as TTDF. According to protocols 10days at 1/2 is too early to call stable.

Gcf51 profile image
Gcf51

I wonder if this funky taste will remain after Botox wears off. I wonder if the approved drug would leave a funky taste in you mouth. Too many questions on unresearched TTDF. I am taking and plan to keep taking.

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