3/12/23 update, Day 8: B1 Therapy, ALINAMIN F, TTFD

[Gcf51]

I am on Day 8 of taking 20mg(a) of ALINAMIN F, still too early to make claims. I had to reduce once on Thiamine HCL (1200 to 1100mg), it is not unreasonable to expect I will need less now. 20mg might be my sweet spot with ALINAMIN F, but on the other-hand I did feel a little antsy yesterday, and jittery is one of the signs of return of symptoms, so time will tell.

Currently my tremor, sleep, energy, and BP are about the same as with the 1100mg Thiamine HCL (better than before B1, but not eliminated). The largest improvements with ALINAMIN F have been mental charily and mood, which is very improved (nowhere near the mania(b), that I experienced ODing on TTFD).

Notes:

a) 20mg was the last non-ODing dose of TTFD from 300 plus days ago. My notes indicate that I had return of symptoms (OD) at 25mg and I wanted to try somewhere between 20 and 25mg, but I could not see a foolproof means of dividing a 50mg cap. The contents of a TTFD cap taste terrible with an even worst aftertaste. I was making my own caps to get the TTFD past my taste buds.

b) Explanation: 30-plus years ago when I was diagnosed Bi-Polar, it was due to my reaction to Paxil (I caught myself telling my boss he was being stupid (no tack). I only took Paxil one week). After about a year, I stopped seeing that doctor because I believe he was more Bi-Polar than I was. I have been off the mood stabilizer he had me on for most of those 30-plus years. I do have a tendency toward self-medication, which means I have some degree of Bi-Polar. As another doctor once told me, a self-medicater has at least one bad doctor. Maybe I should use self-healthcare management, meaning personal healthcare by the individual, which does not exclude healthcare professional support.

1) I am using a pill cutter to cut tablets. It’s fairly accurate, I take the other half the next day, and so should be accurate dosing in long run. I am currently taking 1/2 (25mg) & 1-1/2 (5mg) a day. (I wasn’t 100% sure I would not need 25mg, so I ordered some 25s and 5s). ALINAMIN F does not have the foul taste of TTFD.

2) I recommend  Dap1948 ’s book and her Facebook Group. amazon.com/gp/product/B09TZ...

facebook.com/groups/parkins...

3) More on my BP healthunlocked.com/cure-par...

4) Purchase of ALINAMIN F healthunlocked.com/cure-par...

5) Problem trying to divide 50mg cap. healthunlocked.com/cure-par...

[Gcf51]

Day 9, As usual some days are better, hope I can say this tomorrow, Tremor is less today.

[Gcf51]

+/- Day 10, 3/14/23: It’s a definite, less tremor than on the 1100mg Thiamine HCL. Antsy feeling much worst, so today reduced by 2.5mg (Now taking 17.5mg).

[Gcf51 in reply to Gcf51]

quote from a previous post, "at 1400mg HCL a day. I was seeing some improvement, but not the reduction of tremor and boost in energy that I saw with TTFD"

healthunlocked.com/cure-par...

Yet another quote from that post, "I finally gave up on TTFD because I seemed to be in a never-ending cycle of return of symptoms at yet another lower dose." If it does quickly require less, Is that a bad thing?  Dap1948 says over time she requires less...

[Gcf51]

+/- Day 14, 3/18/23: It’s a definite, less tremor than on the 1100mg Thiamine HCL (must really help to get B1 across the BBB). A days break and now the 4th day at 17.5mg, the antsy feeling has pretty well dissipated.

[Gcf51]

Sorry folks, I just checked, the only supplier, I have found is now sold out.