*** I ended up with High Blood Pressure taking TTFD. I no longer take TTFD. Based on my experience, I would not recommend TTFD. ***
+* Day 51 (7/7/22) of taking TTFD: In the last 12days: 5days of no TTFD, followed by 4 days of 1/4cap and now on 3rd day of no TTFD. (I stopped taking because my BP was high.) My GP increased my Felodipine from 5 to 10mg on 7/1 (My BP is now lower than when I started TTFD). C/L: 2-1/2tabs twice a day. Mania: under control, Mood: Good, Tremor: tremor starts within 8 sec of holding a cup out, Neck Pain: 3 (1-10 highest being unbearable), Coordination/Balance: still seems good, Sleep: I have been averaging above my normal 7hr.
Today, I got my B1 Blood test from sample taken 6/30: 52** nmo1/L (High, normal range 8–30, I had not taken any TTFD for 4 days and not the morning of, Without a doubt with TTFD excess does not get flushed out). Has anyone had their B1 levels tested?
I went back and looked at some previous posts on HU and found “Can Too Much B1 HCL (Thiamine HCL) Cause Hypertension or Other Side Effects?” healthunlocked.com/cure-par...
A few studies have found an association between low thiamine levels and Parkinson's disease, though studies had limitations. One hypothesis is that thiamine deficiency could increase brain cell stress, damage and loss. Two small, open-label clinical trials of a high-dose injectable thiamine showed improvement on patients' movement and certain non-movement symptoms. But the trials did not include a placebo group, so it is impossible to determine how much of the potential benefit may be from placebo effect. michaeljfox.org/news/thiami....
I just tried 500 mg for 3 days and I've had a horrible reaction. So I'm taking a break until they give me an established Carbidopa levodopa and Baclofen. Very frustrating. Just diagnosed with osteoporosa and high cholesterol. So of course I want to put me on drugs for each. Hope what you're doing keeps working for you. Thanks for your help
thiamine promotes the movement of potassium to the intracellular space. Maybe that explains the high blood pressure: less extracellular potassium, a higher sodium:potassium ratio
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