Exciting research taking place and inform... - Cure Parkinson's

Cure Parkinson's

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Exciting research taking place and information about the upcoming Ambroxol Trial.

JustJeff profile image
11 Replies

Apologies if this has already been posted however this webinar i found very encouraging :)

youtube.com/watch?v=7csdnja...

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JustJeff profile image
JustJeff
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11 Replies
Bolt_Upright profile image
Bolt_Upright

Thanks for sharing. Good video.

Zella23 profile image
Zella23

My husband and I are both participating in this Rapsodi trial at the London Free Hospital.

JustJeff profile image
JustJeff in reply toZella23

Great would love to hear how he is getting on :)

glenandgerry profile image
glenandgerry in reply toZella23

Just registered our interest.As Just_Jeff said, would be good to know how you both get on 😊

Boscoejean profile image
Boscoejean

is this it? only in GB? clinicaltrials.gov/ct2/show...

JustJeff profile image
JustJeff in reply toBoscoejean

Yes I'm in the UK however I'm sure any progress would be shared worldwide ,hopefully for all with PD to benefit :)

Zella23 profile image
Zella23 in reply toJustJeff

Lots of questionnaires saliva tests, blood tests IQ testing we were at the hosp for a day. I m being included because I don’t have PD and they are comparing our results. We ve been together for 50 plus years so I assume they think we ve had similar diets etc. We haven’t been called back in yet but they contact us and ask for more samples! We ve had a few more online questionnaires about what we eat and lifestyle.

Boscoejean profile image
Boscoejean in reply toJustJeff

the ambroxol does not seem to be an accepted medication in the US

Zella23 profile image
Zella23 in reply toBoscoejean

We re not on the Ambroxol one but have asked to be included on it. We seem to be on the gut micro biome part of the study. I just looked it up. We haven’t been told if there is a genetic link in our case, but I think not.

goldengrove profile image
goldengrove

Great video, thanks for posting

dangilio profile image
dangilio

anyone of use 200 tablet?

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