Sharing important Info (About a upcoming ... - Cure Parkinson's

Cure Parkinson's

25,502 members26,820 posts

Sharing important Info (About a upcoming PD trial using Lights)

John_morris71 profile image
9 Replies

For those who are interested (see note below - from Dan Adams from the company Photopharmics ).

Hi xxx,

Here's a quick update on our progress toward a phase 3 clinical trial. We announced yesterday our collaboration with the University of Rochester Medical Center's Center for Health + Technology (CHeT) to conduct an "at home, telemedicine, phase 3 trial to establish safety and efficacy for [our] non-invasive specialized phototherapy device for Parkinson’s disease." This will open the trial to patients across the country, and participation should not increase the risk for COVID-19 infection.

You can review the full announcement here.

photopharmics.com/aboutus/m...

We are still expecting to start recruiting later this fall and will keep you updated with our progress. Please share this with others you think would be interested in what we're doing.

Best,

Dan

........................................................

Dan Adams

Science Officer

M 801.494.7804 O 801.770.6960

dan.adams@photopharmics.com

photopharmics.com

Written by
John_morris71 profile image
John_morris71
To view profiles and participate in discussions please or .
Read more about...
9 Replies
park_bear profile image
park_bear

From the clinicaltrials listing:

clinicaltrials.gov/ct2/show...

" Spectramax light therapy device Light therapy device which emits a specific bandwidth combination and intensity of light."

Science of Parkinson's blog explains the details. Scroll partway down the page:

scienceofparkinsons.com/201...

Results of the phase 2 trial reported in Chapter 7 of this thesis:

research.vu.nl/ws/portalfil...

Personally I am most interested in part three of UPDRS. Absolute improvement was quite large at 10 points but only 4 points better than placebo and did not reach stat sig. Nonetheless interesting. It seems possible to me that the placebo may have had some active effect.

John_morris71 profile image
John_morris71 in reply to park_bear

I know what you mean. My intent was to share the news. I am sincerely hoping at least a few can give it a try and have the experience. (Hopefully it will help significantly).

LAJ12345 profile image
LAJ12345

I’ve also seen 40 hz light or sound is an Alzheimer’s therapy. Try looking at this for a while! An hour a day apparently to reverse symptoms. Worth a try if you can bear it!

eurekalert.org/pub_releases...

youtu.be/CKEwOFzhEJQ

FakeLife profile image
FakeLife in reply to LAJ12345

YouTube deleted this for no reason. Can you please repost? This video was helping me till they deleted it. Maybe post on a site with less Censorship plxplxplx tytyty

LAJ12345 profile image
LAJ12345 in reply to FakeLife

eurekalert.org/pub_releases...

I can’t remember what the other one was called sorry. It looks like the person who put it up on YouTube removed it for some reason.

LAJ12345 profile image
LAJ12345 in reply to FakeLife

Was it similar to this one?

youtu.be/Mhgz57EWw0I

Maybe they were worried they would get sued if someone had an epileptic fit watching it

FakeLife profile image
FakeLife in reply to LAJ12345

It was similar, with different audio. It's just weird that it was the only video with the correct frequency of audio, and video; but it's the only one gets removed...

LAJ12345 profile image
LAJ12345 in reply to FakeLife

Ah maybe they are going to sell it. How was it working For you? For PD or dementia symptoms?

Canddy profile image
Canddy

For those interested here is a link to the trial on clinicaltrials.gov

clinicaltrials.gov/ct2/show...

This study has not yet started recruiting

You may also like...

Light Therapy Clinical Trial

Celeste Light for PD trial—a phase 3 clinical trial in which we will show the efficacy of our...

Light Therapy Trial: Update starting to recruit in December 2022

want to update you about the status of our pivotal clinical trial (which can also be called a phase...

Exciting research taking place and information about the upcoming Ambroxol Trial.

Any news about stem cell treatment for PD?

years in with reasonably mild symptoms and not progressing much. My PD doctor seems to suggest...

Light Therapy for PD