The Glove By Kinnections : A low-cost non-invasive Parkinson's Disease Treatment

[Kinnections]

Hi Everyone,

We are Kinnections. We are a group of Rice University Students who released this DIY Open Source Glove backed by research from Stanford(pmc.ncbi.nlm.nih.gov/articl... for patients to use and recreate while waiting for the FDA approved glove : oedk.wildapricot.org/Treatm...

We've gotten a lot of traction over the past couple of months and received tons of requests to have gloves potentially available for people to easily obtain without having to DIY one. We've made an initial interest form on our website to gauge how many gloves to make available in our first batch of orders which we hope to release by the end of this year. Our focus is on getting as many people a set of working gloves as possible!

Please note: this form is completely risk free! No payment required today and only to gauge demand!

Fill it out here : kinnections.foundation/

Let us know if you have any questions, comments, feedback or suggestions.

Best,

Kinnections

Email: [e-mail]

[Farooqji]

Is it similar to pater tass glove

[Kinnections in reply to Farooqji]

Yes, the glove was inspired by Dr Tass and his research.

[Farooqji in reply to Kinnections]

How much is the expected price

[Kinnections in reply to Farooqji]

Hi! The current estimate is about $250 excluding shipping costs. We do plan on offering sliding scales for people who are unable to achieve this!

[park_bear in reply to Kinnections]

Sounds great! Thank you for doing this!

[stlewy in reply to Kinnections]

Is the glove controlled by 2 separate processors and two separate batteries (power pack) synchronized by Bluetooth?

[Kinnections in reply to stlewy]

Yes the gloves are synchronized wirelessly with <10ms delay between them. Two separate control units and batteries will be included in a kit.

[brauncs]

So this will be a kit that will need to be assembled by the buyer? Also, do the microprocessors come with the algorithm pre-installed? I ask because I made a pair of gloves following the PDBuzzboard design where I got all the info from his GetHub site but struggled with loading the sketch.

Thank you, Craig

[Kinnections in reply to brauncs]

Hi, yes all the algorithms would come pre-installed! The kit is designed to be plug and play, no hardware tools, software tools or technical experience required. We decided on a kit so that users have to ability to customize/modify based on personal preference, which fits our initial mission to have this be an open source solution.

[Julia5440 in reply to Kinnections]

I don't understand how the glove can be customized and how a user would know how to do this. Can you explain? Also, is it possible to see a video of the glove and how to set it up and use it?

[TactileDesign in reply to brauncs]

Hi Craig, I think I might be able to help you get your PDBuzzboard gloves working. Contact me through chat if you would like me to help you troubleshoot your build.

[brauncs in reply to TactileDesign]

Thanks for your kind offer but I was able to program my gloves with the generous help of another pwp on this blog. I used them for three months and the first thing I noticed was my sense of smell really improved. After that I noticed my strength and coordination and my dystonia improved which was great but after 3+ months it seemed as f I had plateaued so I stopped using them. Also, I had a had a hard time coordinating my C/L use while using the gloves regularly and it was making it difficult to predict my on/off timing.

At the same time I was starting to experience short stepping and gait freeze but my gloves didn't help with that. I'm willing to try a different pair of gloves but for now I am using a small TENS unit that mimics the BeechBand to help with my gait problems.

Cheers, Craig

[JayPwP in reply to brauncs]

Hi,Which TENS? How many channels does it have? What is the stimulation you use, 70 bpm?

[brauncs in reply to JayPwP]

It's a Belifu Model #SM9126 that I got a few years back on Amazon. I think it was about $30. It's got 6 channels and each channel has 4 modes. When I was checking out the modes I found that in Main mode 1, setting # 3 (Crosscut fist kneading(EMS) was like a tapping sensation so I stuck two small pads on my arm and connected 1 wire, with 2 electrode connectors, to them and I can adjust the intensity of the taps, that are factory set at about 75 BPM. The trick, as Carl Beech explains on his website, is to have it tapping but not concentrate on the tapping, So it's not as automatic as is seen in some of his amazing videos, but it seems to help me with my short stepping ang gait freeze. The only downside is it will only run for a maximum of 1 hour without you having to reset the time in ten minute increments. I put it on when I feel an off time coming and then turn it off when I'm on. I bought a wrist wallet and put it in that and keep the connections in place with enough coban to hold it in place. Like I said, the trick is to be able to have it at an intensity where you can feel it but forget about it, or it doesn't work. Since I took this photo I put the electrodes further up on my forearm and keep them in place with a wrap of coban. If you try this please let me know how it works for you👍

Cheers, Craig

2

[JayPwP in reply to brauncs]

Thank you

[Julia5440 in reply to brauncs]

Which glove are you using?

[brauncs in reply to Julia5440]

Hi Julia, this is not a VibroTactile device (glove). This is an experiment that I did with a TENS unit I had to mimic the tapping effect of the BeechBand that was developed by Carl Beech and a friend of his that has helped some PWP in the UK with gait issues amongst other symptoms. I would call it a Metronome device.

Cheers, Craig

[stlewy in reply to brauncs]

Nice job Craig. Great info.

[JayPwP]

Internationally available?

[Kinnections in reply to JayPwP]

Yes, The Glove can be shipped internationally!

[JayPwP in reply to Kinnections]

Thank you.

Just one more question,

Would it have multiple stimulation patterns? For example, 1 Tass pattern and 1 random pattern?

[JayPwP in reply to JayPwP]

Kinnections ???

[Kinnections in reply to JayPwP]

Hi,

The Gloves will have default preset vibrations such as the VCR and Noisy VCR documented and implented by Dr Tass. However, we are in the process of implementing a feature where vibrations can be fully customized by the user!

Thank you for your question! Feel free to suggest any other features you think may be helpful!

[JayPwP in reply to Kinnections]

Thank you 🙏

[gaga1958]

Your interest form which I clicked on and filled out, bounced back to my email address as non-deliverable.

[Professor_Pieter in reply to gaga1958]

For what its worth, I just filled out the interest form and successfully received an automated acknowledgement e-mail.

[blackbear701 in reply to gaga1958]

I just successfully filled out the form; try it again.

[Jmellano]

what symptoms show improvement with this glove?

[Birdflow in reply to Jmellano]

I cannot guarantee its effectiveness, but several people have been helped by DIY.

youtube.com/watch?v=bMVC5Ic...(Not working as expected?)

youtube.com/watch?v=_gmdfrk...(Not working as expected?)

youtube.com/watch?v=YEEwbxF...(Not working as expected?)

[Jmellano in reply to Birdflow]

I still dont see non motor symptoms relief (fatigue, apathy, depression etc….from the gloves

[karter1]

Will both the 100 and 167 stimulations be available? Thanks for creating these kits!

[LittleBigPopit]

Do you have a video you can show of your design running?

[Kinnections in reply to LittleBigPopit]

Hi,

We will be updating our website with more information with what a kit would look like soon! Please sign up on the website if you can, and you will receive email-updates whenever we make progress!

Feel free to email us at [e-mail] with any more questions you have!

[Agate_17]

I’m interested. How do I proceed?

[JayPwP in reply to Agate_17]

Fill up the form, link in main post

[Professor_Pieter in reply to Agate_17]

They want us to fill out a form to determine if there's enough demand to start making these gloves. See the original post for instructions.

[PWPInnovate898]

congratulations to the glove team at Rice!

it was fun to collaborate with you in the earlier phases of this project!

[Kinnections in reply to PWPInnovate898]

Hi,

Thank you so much! We really appreciate the guidance you gave us!

[Farooqji]

Waiting for comments from WinnieThePoo

[Fatigued]

forgive me, but what is a glove ? (And not the thing worn on the hands)

[Julia5440]

The link to the article doesn't work.

[Julia5440]

I clicked on the link to the Wild Apricot page and it said:

---

SKILLS NEEDED:

We recommend soldering, 3D printing with PLA, and mild sewing. But, the soldering joints are simple, the 3D printed parts can be ordered, and can alternatively use a stapler or fashion tape for sewing.

---

This sounds complicated to assemble.

[Kinnections in reply to Julia5440]

Hi,

That was our first iteration of The Glove, this kit would not need any tools to assemble! We will be updating our website with more information with what a kit would look like soon! Please sign up on the website if you can, and you will receive email-updates whenever we make progress!

Feel free to email us at [e-mail] with any more questions you have!

[Turnipbarrow]

thank you for making this available !

[Julia5440]

Have any trials been completed with your glove to clarify whether it leads to positive outcomes?

[Julia5440 in reply to Julia5440]

...even informal trials by a few individuals with PD?

[JayPwP in reply to Julia5440]

These gloves use the Tass stimulation which has shown positive outcomes with PD. This gloves team has not devised or invented anything.

[Julia5440 in reply to JayPwP]

Thanks! So you are saying that they are identical in design and function to the gloves being used in the clinical trials?

[JayPwP in reply to Julia5440]

Exact replica in function I believe, but way more compact and portable in design.

Actual efficacy can only be confirmed after using the gloves.

[Weng888]

thank u, the kinnections team, for bringing hope closer to us.

[Lucas_s]

great initiative - can’t wait!

[missingnewmexico]

Thank you..this is such a welcomed development!

[Julia5440]

Is this the same glove? github.com/High-Intensity-L...

[Scooper55]

yes please!