Please read all post carefully.

[Bailey_Texas]

Please find where i said "that vitamins and supplements are no benefit" in my post. Like MBAnderson wrote in his response.

Personally i would not seek out a wholistic healer. In the last 12 years i have not heard about or read about a wholistic way of treating PD that has been proven to control PD. Most if not all are scams. The only way (My opinion ) to effectively manage your Parkinson's is with conventional meds and exercise.

I have had PD for 12 years and i don't take any Supplements not even a vitamin. I only take Sinemet (3 25/100 and 1 50/200 every 4 hours 24/7) and Gabapentin 600 mg a day.

I believe exactly the opposite. Here are a dozen studies on just one supplement - vitamin D, posted a few hours ago by easilly, as just one, of hundreds, of examples. Many of posts on this forum is the exchange of information on nondrug therapies (for constipation, insomnia, anxiety, tremor, cramps, pain, etc. ) that are beneficial. Put thiamine/vitamin B1 in the search window.

To say that vitamins and supplements are no benefit is to say that controlling inflammation and oxidative stress isn't important or that what we ingest does not matter - which, of course, is silly. Eat McDonald's 3 times a day and see how you feel in a month or 2.

Here's one thing we know for certain. Some people who have lived with Parkinson's for many years say they have slowed their progression. Some say they have stopped their progression and some say they have diminished their symptoms. Some say they are healthier now than they were when they were diagnosed and some even say they have become symptom-free.

Some of those people took prescribed Parkinson's drugs and followed a non-drug regimen, some of those people followed a nondrug regimen only, but none of those people follow a drug regimen only. In other words, by rejecting everything except prescription drugs, you close yourself off from any possibility of improving.

I agree that most PWP take prescription drugs and are well served by them. Therefore, it is not a decision of prescription drugs versus nondrug regimen. It is a decision of if/when to add prescription drugs to a nondrug regimen.

See how much fun this website is?

healthunlocked.com/parkinso...

[Farooqji]

I think you can get better results by using MP instead of C/L

[Bailey_Texas in reply to Farooqji]

why same med

[Gioc in reply to Bailey_Texas]

ehm sorry, but is levodopa a medicine or a supplement?

I take both vitamins and levodopa (madopar) because they watch and work.

[Bailey_Texas in reply to Gioc]

Levodopa is a medicine controlled by the government.

[Bailey_Texas in reply to Gioc]

i an glad you found some thing that works for you

[Gioc in reply to Bailey_Texas]

thank.io also uses the madopar that a medicine based on levodopa similar to the simenet because I think it takes. However I understand your thinking that it is not “against” the supplements and I share it.

[Bailey_Texas]

madopar has Levodopa and benserazide

sinemat is carbadopa and levodopa

i am not against anything that helps someone

i think pwp should use Prescription meds as primary

[Greenday in reply to Bailey_Texas]

I personally believe that the Holistic approach against the disease is the synergistic effect of the following :

1) Wise Supplementation / Nutrition

2) Correcting insufficient / deficient levels of Vitamins / Minerals / Aminoacids

2) Exercising

3) Effective Drugs with minimum side effects possible

4) Socializing

5) Good Psychology

The order is random. I consider all of the above primary factors against the disease. PD drugs may improve symptoms, but they cannot synergistically or alone delay the progression of the disease.

Each of those factors taken separately don't apply to everyone, but all of those factors when combined together may apply to most. The fact is that on many PD patients who just depends on PD drugs alone, after the course of 10-15 years, their disease progresses into a terrible irreversible condition. Lack of any cure, if there is a single recipe which applies to everyone, a synergy of factors such as the one describe above is currently the most viable option to follow.

Nutrition does not necessarily mean to follow a specific bland diet, but to receive all those nutrients the body needs to avoid deficiencies that will exacerbate any health condition. Supplementation is not necessary if food sources can cover nutritional needs. Supplementation / Nutrition is highly individualized. There is not such specific regimen that applies to everyone. However, there is a a fine line between supplementation and body balance. Unnecessary oversupplementation may cause imbalances in body nutrients and turn to be detrimental to health.

Bottom line, you cannot reject anything, but at the same time you cannot accept everything, this is the nature of this yet-to-be-cured disease.

[Greenday]

PD is well known to cause certain deficiencies. The list is long and includes Vitamin B6, B12, Folate, Vitamin D, Glutathione, Zinc, Magnesium, certain lipids and many more. Body's effort to counter increased oxidation and to lower high homocystein levels, depletes many of those nutrients. Deficient levels may exacerbate PD symptoms, increase homosysteine and peroxide levels in the blood and accelerate the progression of the disease. Unless there is a deficiency, which is very common among PD patients, supplementation won't do much for the disease. Low levels of B6, B12, Folate will increase homocysteine levels, this is a fact verified by human studies.

A good rule of thumb is for PD patients to take specific blood exams and to correct any deficient levels with supplementation or targeted nutrition. Wise supplementation and exercising are complementary to the PD drugs.This is the holistic way against the disease

PS. Beef meat like that contained in the burgers is not such junk food as it is widely considered. It is the combination with sedentary life that make it appear as junk. Actually beef meat is a rich source of vitamins, aminoacids and minerals such as B12, Zinc, Selenium, taurine, glutathione, creatine, also B6, Niacin, phosphorus and many other bioactive compounds.

[racerCP]

What happened with CrossFit? Are you still following that regime? Have you heard of Stovy exercises ?

[Bailey_Texas]

i do crossfit on a limited basis just enough to maintain. I stopped trying to do more.

415 pound dead lift was enough for me. No i don't know the name.

[bassofspades]

Excuse me, Tex, did you start on that dose of Gabapentin from the beginning or did you work up to that dose gradually? My Dr started me on 100mg each night, building up to 300mg per night over 6 weeks, then she'll see how it goes. Im sure that dose is going to do nothing for me. So far 100mg doesnt touch it.

[Bailey_Texas in reply to bassofspades]

I started taking 100 mg 3 times a day for i week and i was doing better so i asked to increase to 600 and my Doctor not my Neuro said ok. My family doctor prescribe gabapentin for my foot pain. He had read that it could help PWP. It helped my pd from the first dose.

The way i feel now i would suggest that you increase your dose the following way

Usual Adult Dose for Postherpetic Neuralgia

-Initial dose: 300 mg orally on day one, 300 mg orally 2 times day on day two, then 300 mg orally 3 times a day on day three

-Titrate up as needed for pain relief

-Maximum dose: 1800 mg per day (600 mg orally 3 times a day)

COMMENT:

-May be taken with or without food.

-Half-tablets not used within 28 days of breaking the scored tablet should be discarded.

[bassofspades in reply to Bailey_Texas]

Thank you BT!

[Greenday in reply to Bailey_Texas]

Thank you very much for your valuable information. Well appreciated!