Approximately three months ago, I asked if Sinemet confers residual benefits. Some of you said yes and one of you provided a link to a study suggesting that there is a long term benefit. However, I posed the same question to my Parkinson’s nurse who basically said that approximately five hours after a dose of immediate release carbidopa levodopa there is a "wearing off" and there is no further benefit. That seems logical since nearly all patients need another dose approximately five hours after their previous dose.
So what does this have to do with my coronet duo red hat? Well, it occurs to me now that I wrote that post a few weeks after I began wearing my coronet duo red hat twice a day. Now, approximately four months after wearing the red hat, and after months of thinking it must be placebo effect, I am becoming a believer.
My handwriting was never very good, but it was COMPLETELY illegible by the time I was diagnosed with Parkinson’s. There's no doubt in my mind that carbidopa/levodopa helped my handwriting and virtually all other symptoms, but here's the the thing -- my handwriting is completely back to normal even 12-18 hours after my last dose of sinemet. Maybe the immediate release sinemet works 12-18 hours, but the only thing I have changed within the past five months is adding the red hat. My sense of smell is better, my affected side (right side) is back to very near normal in every way even many hours after my last dose.
I just missed when mannitol was the hot topic and I have been taking high dose thiamine within weeks of my diagnosis so I have no real way of knowing whether thiamine helps (although I think it does), but I sincerely believe the red hat is a game changer for me. I need to add the usual caveat that we are all different and what seems to work for some of us doesn't work at all for others and that this could still be placebo effect, BUT if you are considering buying or building a red hat, you can Google "red hat for Parkinson's Disease" or "Photobiomodulation for Parkinson's Disease" if you don't just want to take my word for it.