When I first joined this group a little over three years ago, I breathlessly scoured every post in search of the "silver bullet" which would slow or stop the progression of Parkinson's Disease and I spent a small fortune buying virtually every supplement which seemed reasonably possible to achieve that result. At one point, I took nearly 50 pills per day. It made me feel good to actually DO something which might help my condition and it made me feel almost smug to think perhaps I could do something which was not approved by the doctors at Mayo Clinic and/or the greedy people who comprise "big pharma" -- whoever that is.
During those early years on this site, I was almost angry at the curmudgeonly veterans who didn't seem to share my excitement about the latest story about supplements or the latest success stories with fruit flies and mice. They always circled back to that dreaded carbidopa levodopa stuff even though it had horrible side effects and they weren't particularly encouraging or enlightening.
I really hope I am not becoming a curmudgeon and I will try my best to be a source of encouragement and positivity, but forgive me if I don't get as excited about the proper "therapeutic dose" of a particular supplement or the new "Parkinson's Protocol of the Day" or the latest advances with lab rats.
This is a wonderful community with many intelligent, caring people and I look forward to seeing your posts and comments every day. Virtually all of the supplements I still take and the most encouraging thing I have purchased (Coronet Duo Red Light Hat) came to my attention because of this site and I am very grateful for that. At the same time, I want to acknowledge the wisdom of many of you who came before me. If there was truly a silver bullet, we'd all be taking it by now. We are fighting a disease (diseases, I think) which varies considerably from person to person, which likely has multiple causes, and multiple components to an actual cure.
As with the stages of grief, I have come to accept my Parkinson’s Disease. At least for now, it's not nearly as bad as I expected. At least for now, I will be less mad that the "gold standard" for treatment (carbidopa levodopa) hasn't been substantially improved upon for 50 years. Maybe it has not been substantially improved upon for 50 years because it's pretty darn good! It works great for me and I need to spend less time obsessing about the latest trendy supplement and more time enjoying my life. If that makes me a curmudgeon, so be it. 😊