Is anyone taking vitamin K2 helping gait ... - Cure Parkinson's

Cure Parkinson's

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Is anyone taking vitamin K2 helping gait and balance?

LauraYu profile image

My name is Laura, currently 53 ( diagnosed Parkinson’s at 45). My major symptoms are gait and balance issues, along with difficulty of movement. Recently I have learned that vitamin K2 may help Parkinson’s, I started taking MK4, since 98% of vitamin k in the brain are MK4. My experience is mixed.

On the positive side, my right food is relaxed, this is the first time ever since I got Parkinson’s. I now can sleep with my relaxing food, what a bless! Also I noticed I can raise my arm a little, sometimes even to reach upper cabinet. It also cured my long time hip pain. I used to get steroids shot every few months, the pain was gone after few weeks of taking K2.

On the negative side, I noticed my legs seem to be weaker, and more dragging.......

I started at 100 mcg a day at beginning, then increased to 200 mcg, 300 mcg, started noticing these side effects plus sign of anxiety, so I reduced it to 60 mcg a day now, with 1000 IU of vitamin D. This vitamin K2 is definitely doing something on my Parkinson’s symptoms, the first few days of taking it, I was doing so great, even thought I was going to recover. Is anyone taking K2 here? I remember I’ve see someone here mentioned it helping with gait and balance.

Thanks for your reply! Laura

26 Replies

Hi Laura!

Vitamin K is essential for bone health and cardiovascular health, because it is a necessary component of the enymatic machinery that gets calcium out of the bloodstream into the bones. There is some uncertainty in the literature whether it is K1 or K2 that really counts. I take a combo with both versions of K2 - MK4 and MK7, plus K1. I have been taking it since long before Parkinson's so I cannot report on its effect there.

Other necessary components of this machinery are vitamin D, silica and boron. I have also noticed that glucosamine condroitin makes a difference.

I wrote about these matters here:

Vitamins and Minerals for Bone Health and Reduced Risk of Cancer

tinyurl.com/hya5dwd

Vitamin K: Unsung and Essential

tinyurl.com/yd9l4j3q

Details of the vitamins and minerals that improve bone strength, reduce fracture risk, prevent hardening of the arteries, improve cardiovascular outcomes, and reduce cancer risk.

What You Need to Know to Reduce Risk of Hip Fracture and Cardiovascular Disease

tinyurl.com/y8o9jy8u

A review of the foregoing + calcium deposits on teeth as a sign of trouble

-PB

Goldencbc profile image
Goldencbc in reply to park_bear

PB, do you take all of these separately? Or are they included in a supplement you take? Thanks.

park_bear profile image
park_bear in reply to Goldencbc

Here is the vitamin K supplement that I take:

amazon.com/gp/product/B01K3...

LauraYu profile image
LauraYu in reply to park_bear

Thank you park_bear for replying to me and sharing your knowledge! Yesterday after taking just 30 mcg of MK4, I became so weak, couldn’t even stand up. This morning I added 30 mcg of MK7, so both MK4 and MK7 total 60 mcg. It seemed to make difference already. I can raise up from a chair and legs tremor improved. Not too sure if it’s just a coincidence or not. I will see what happens in next few days. My body is so sensitive now, up to the point that I react immediately to tiny vitamin.

Once again thank you for your note! It is a life saver for me this morning 😄Laura

Hi, have you looked into the vitamin B 1 protocol ? A lot has been written about it on HU.

LauraYu profile image
LauraYu in reply to KERRINGTON

I tried B1 also, 100 mg made me shaking like a machine lol. So I stopped, guess later on when I run out of options again, may try second round.

KERRINGTON profile image
KERRINGTON in reply to LauraYu

That's too bad. It does that to me too so I keep cutting the dose. It really improves my balance, gait and the ability to get up from bed and a chair. Why not try playing around with smaller doses, skipping days, once weekly etc

LauraYu profile image
LauraYu in reply to KERRINGTON

What dose are you taking? Maybe I should think about it again. I am scared now, few days ago I took a multivitamin gummy with 2000 IU of vitamin A. I ended up almost disabled, couldn’t even go to washroom by myself. I am so desperate, feeling the disease is really trying to completely disable me🥲🥲🥲

KERRINGTON profile image
KERRINGTON in reply to LauraYu

I know how you feel !! Wow, I wonder what was in that gummy ? Do you have any food allergies ? I am taking 125 mg thiamine HCL 2X DAILY, but that's way too much for you. Try 25 mg B1 every other day to see what happens and how you feel. Re post/ edit your last post under a different heading like Desperate, or Supplements make me worse...maybe it will get the attention of people who know a lot more than I do. I guess your MD isn't much help ??

LauraYu profile image
LauraYu in reply to KERRINGTON

I actually don’t have any food allergy. My body suddenly became this sensitive. If I take vitamin D, even 400 IU, It basically will kill me to the point that I almost lose bladder control. I ordered some B1 today, want to give it another try. Can’t sit properly, can’t stand because of losing balance, can’t lay down because of shaking....... every single minute is so hard to pass. After I got Parkinson’s, I really started to understand what “ desperate “ means

Do you take meds or just supplements?

LauraYu profile image
LauraYu in reply to Hikoi

I am currently taking Zandopa with some Sinemet 4 times a day, 3 times during the day and one time before sleep, so I can have roughly 4 hours of sleep. The medicine can only last for about 2-2:30 hours, and the rest of time is up to my own struggles 😓I am in Canada, my neurologist suggested to add some Pramipexole, I am a little worried. I used Neupro patch before, seating, anxiety, shopping urge.......I am thinking of Azilect now

Hikoi profile image
Hikoi in reply to LauraYu

I think you have signs of underdosing particularly the weakness you experience. Azilect or entacopone are good choices as well as increasing your levadopa

LauraYu profile image
LauraYu in reply to Hikoi

Thank you 🙏 I will talk to my neurologist on next appointment, Azilect.

Astra7 profile image
Astra7 in reply to LauraYu

I have been taking Vit K for the past few weeks as I keep freezing and falling when playing tennis. The last 3 times I played (after a week of Vit k) I did pretty well - stayed on my feet and only occasionally froze.I also moved my pramipexole to the evening as my falling got a lot worse around the same time I started that. Conincide perhaps.

I also cannot take the B1 high dose as it makes me very twitchy and anxious.

I think azilect is good and may slow progression.

LauraYu profile image
LauraYu in reply to Astra7

Sorry for the late reply! I also had a couple of weeks improvement with vitamin K2, I can raise my arms to reach upper cabinets, my balance improved, my hands were more flexible, etc. I even thought I might recover 😊but I started to have issues after that, more like anxiety kind of feeling, my body holds tight, having hard time raise my legs.

I started my 3rd round trying vitamin B1 now, from 25 mg up to 150 mg now, still adjusting. Eventually I think I will come back to K2 again, I personally feel somehow calcium related factors do impact my symptoms, vitamin D makes it worse, calcium, phosphorus, vitamin K2....., my body doesn’t seem to be able to maintain a proper balance.

KERRINGTON profile image
KERRINGTON in reply to LauraYu

Be careful with B1 as too much/little can give you that anxiety feeling, just right relaxes tensIon , improves energy. I just spent 2 weeks adjusting my B1 to the point where I was miserable. I had stopped for a day, or two, and resumed at a higher dose because I decided to test the waters...I am back to 125mg 2x day, or 250 1x a day.

LauraYu profile image
LauraYu in reply to KERRINGTON

Yes, my past couple of b1 rounds started at 100 mg, and that within an hour caused anxiety. However I found that when I took Now brand b50 twice a day, it didn’t cause anxiety. This is equivalent to 100 mg of B1. So I am currently taking 150 mg b1, electrolyte power, and B50 complex. With this package, I sleep well, and the episodes of whole body shaking while I am sleeping stopped. But my left arm, which is my good arm, seems to have a bit of resting tremor now . I am still observing, it’s just been 5 days since I started 150 mg B1, probably too early to conclude.

The only problem of taking b50 is the b6 component interacting with Zandopa . I do notice my on- time has been shortened. I found a chewable B Complex that only has 5 mg of B1 to B6, I am testing now, not sure if this tiny dosage is going to be enough.

Let’s pray for both of us to have a successful B 1 journey 🙏🙏🙏I read those successful B1 stories, I smile for them, happy for them, admire them, and to be honest, I am a bit jealous 😂😂😂let’s hope we will become one of them 😄😄😄

KERRINGTON profile image
KERRINGTON in reply to LauraYu

So in all you're taking 150 mg of B1 ? 50 + 50 from the NOW BCOMPLEX plus your own extra 50 MG B1 ? If OD on B1 the same thing happens almost IMMEDIATELY..shaking and anxiety intensify.

Are you taking magnesium a few times a week ? Dr C recommended it along with the B1.

LauraYu profile image
LauraYu in reply to KERRINGTON

The electrolyte power has magnesium/ potassium etc. it’s full spectrum electrolytes. For B1, I am juggling between b complex and B1 pill to make sure my total intake is 150 mg. I do feel shakier these days, maybe I should lower B1 to 125 mg. I will see. I will let you know, also please let me know how you’re doing with your B1 adventure.

Astra7 profile image
Astra7 in reply to LauraYu

Alas the Vit K has failed to keep me upright and I fell twice at tennis on Saturday. I will try some electrolytes and a little Vit B next. I also wonder if drinking milk is a problem as I’ve had a bit lately when I can’t sleep.

LauraYu profile image
LauraYu in reply to Astra7

I’ve been drinking milk my whole life until recently, I discovered that My balance is worse after the morning glass of milk. I stopped the milk and all dairy products. I replaced it with almond milk

LauraYu profile image
LauraYu in reply to Astra7

It’s interesting to hear that vitamin K gave us these kinds of side effects. I thought it’s just myself. Guess we need to be careful!

LauraYu profile image
LauraYu in reply to Astra7

Forgot to mention, I also take electrolytes with B1, it seems to help

Just started three days ago. I’m hopeful though. It can’t hurt, I also have osteoporosis and it’s said to be helpful for that too.

LauraYu profile image
LauraYu in reply to Ca1208

Let us know how it goes. Hopefully it helps!

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