My Thiamine live experiment - Coffee anyone ?

[Xenos]

I'm in my sixth week with thiamine hcl. Doing good, but with highs and lows.

I reread RoyProp's threads and discovered something that escaped my attention till now : coffee (and tea) seems to be detrimental to B1 absorption.

Could that be the case with intramuscular B1 ?

I drink a lot of coffee (5 to 7 espressos a day)

[bassofspades]

Google search says its true. Caffeine consumption inhibits b1 absorbtion, so does nicotine. Im sadly down to 1 cup a day and 3 cigs. Wish i could do one more cup around 2pm but 3 cigs is plenty for me.

[Xenos in reply to bassofspades]

I guess I will follow your lead... downsizing to one cup a day. The one with mannitol

[bassofspades in reply to Xenos]

I just hope 1 is not too much!

[Gioc in reply to bassofspades]

bassofspades could you explain Xenos that after 7 expressed a day even a healthy elephant would have tremors?

[MBAnderson in reply to Gioc]

ha

[Gioc in reply to Xenos]

ah ah ah Xenos vous ne le ferez jamais, le café et les cigarettes sont trop bons.

——-

ah ah ah Xenos you'll never make it, coffee and cigarettes are too good.

[GymBag]

I was getting ready to try Thiamine again, then I read this post . I depend heavily on caffeine to support the other medication . 3 or 4 coke and a couple coffee and 2 cigarettes a day .Each coke I take a long time to drink, I snuff out and re-light each butt 3 or 4 times and keep reheating my coffee in the microwave, resulting in a fairly constant flow of caffeine , nicotine ,sugar and water. I guess that explains why the Thiamine did not work for me. I am not giving up what I know works. (actually I'm not sure I could) Like when my family decided that I was either intolerant to Gluten or allergic to wheat so I could not have Cheerios cereal for breakfast. (I thought it was made from oats ) NUTS

Thanks for bringing this to light

[KERRINGTON]

Thanks for digging..I was taking it in my coffee, and did notice the difference...back to taking it with green tea.

[JANVAN]

Hi Xenos !

How are you doing ?? Do you do other things besides Thiamine ??

[Xenos in reply to JANVAN]

Hello Janvan !

Concerning thiamine hcl, I stopped for one week - I am travelling - and felt way worse. I do not know if the are linked but I am back to 2 injections a week and feeling better this morning.

I also go on with mannitol everyday. It's over a year now, with no obvious result, but the seminal paper by Pr Daniel Segal is still compelling, at least for me.

last but not least I take a small dose of amitryptiline, a tricyclic pain killer and antidepressant, that could slow the progression of the disease. It restored my sleep big time and no more pain.

Needless to say, I do all that with the consent of my GP...

[ParlePark]

Been a die hard major coffee drinker all my life. Heavy caffeine freak. But had to stop as made my tremors worse. Use San Francisco decaf espresso roast-Amazon -and it’s good! No doesn’t have the kick but use it every morning with mannitol. Grind it strong. Doesn’t seem to effect my tremors as much.

[Hidden]

Hmm, I don’t drink coffee but I take a green tea supplement with a concentration of ECGC that has 80 milligrams of caffeine. I suppose it could inhibit B1 absorption as well.

[bassofspades in reply to Hidden]

80? Are you sure? Double check that. Sounds like someone left out the decimal

[Hidden in reply to bassofspades]

Yes, 160 mg of caffeine for two soft gels and I take one.

[bassofspades in reply to Hidden]

My NOW brand has 4mg per capsule. There's options.

[Hidden in reply to bassofspades]

Thanks, unfortunately I need the caffeine otherwise I’d never be able to workout in the morning.