I've defeated my loss of levodopa benefit... - Cure Parkinson's

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I've defeated my loss of levodopa benefit that happens after eating protein

BUZZ1397 profile image
45 Replies

To start with, an update, I am back on the MP, no Sinemet at least unless I hit another obstacle unforeseen.

I hurt myself today eating some delicioooous bbq beef. It was soon after getting my dopamine right and I had been feeling pretty good actually. The beef protein began to rapidly bring me down, tremor getting worse and leg muscles becoming rigid. So I decided I would try what I used to do when I messed up when I was taking Sinemet, take more. So, following what I call Silvestrov method, I took some green tea extract and a small amount of C and I would have taken some fish oil but had none then I started waiting like I always do. I wait awhile to let that get into the blood before taking the MP. But pretty soon I realized taking the green tea extract and some C was all that was needed to get the levodopa back to flowing across the BBB, easing my tremor. I was back to walking good and that dose of MP kept working for over 3 hours. Yay! Green tea extract and 100mg C (childrens size), won't leave home again without it.

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BUZZ1397 profile image
BUZZ1397
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45 Replies
cshamb profile image
cshamb

Thank you for your post. How much MP do u take.

BUZZ1397 profile image
BUZZ1397 in reply tocshamb

Simple answer, 400-500 mg L-dopa at a time.

Juliegrace profile image
Juliegrace in reply toBUZZ1397

Hi Buzz,

If you're taking 400-500 MP l-dopa at a time, how many times a day do you take that dose? And were you taking the same size dose of Sinemet?

Thanks,

Julie

BUZZ1397 profile image
BUZZ1397 in reply toJuliegrace

More complicated answer, I dose while on mp 4 times a day. Twice that often on Sinemet. But to be truthful I am already confronting a complication. While using Sinemet I complimented it with a product called GABBA-plex (contains a whole lot of things that are good for PWP). I am trying to add that in to the current MP regimen and finding I may need to reduce the dose of MP, for I get a bit hyperactive if I take 500 mg of MP and a cap of GABBA-plex at the same time.

annmariebaird profile image
annmariebaird in reply toBUZZ1397

I have tried MP several times, but get extreme dyskonesia after a couple of days. Anyone have a solution?

laglag profile image
laglag in reply toBUZZ1397

What is GABBA-plex? I Googled it and Minions came up? 😀

BUZZ1397 profile image
BUZZ1397 in reply tolaglag

Hi! Its just the name of a product I buy from Swansons. Besides GABBA (gamma amino butyric acid) it also has piperidine and some relaxing stuff, which help me keep a good mood.

ddmagee1 profile image
ddmagee1

Thanks for posting. I ran into the same problem, eating a big beef sandwich. Green tea extract and Vit. C is something I have not tried. Thanks for the advice.

ruff1 profile image
ruff1

Do you take the green tea and vit c before you eat a protein meal ?

BUZZ1397 profile image
BUZZ1397 in reply toruff1

Never have yet. That which I posted has only happened once. I'm not even sure it is a reliable intervention at this time. I was just so surprised yesterday and posted enthusiastically. I've got my fingers crossed it will work for me the next time I eat too much cow. :)

Motal profile image
Motal in reply toBUZZ1397

Greetings. I am curious to know -- a few months later - if you've had a chance to replicate the green tea extract/vitamin C intervention on other occasions? Also, how much of the green tea extract do you take? And in what form? Many thanks..

BUZZ1397 profile image
BUZZ1397 in reply toMotal

Hi, thanks for asking. I sure do continue to do that, when I am "on" mucuna pruriens. I've been having trouble lately, since getting a reaction from a pneumnia immunization and subsequent antibiotics. But I can say, although I do not understand how it helps, that taking some additional green tea extract and a bit of vitamin C continues to help after eating a cheeseburger or something. The green tea extract tabs I use say they contain 47 mg of EGCG and I am taking half of a 500 mg chewable childrens vitamin C tab.

Motal profile image
Motal in reply toBUZZ1397

Many thanx, Buzz. Any particular source for the green tea extract? How much more concentrated is it than a good cuppa green tea? I am hoping it does the trick cos the slightest few grams of protein messes with levodopa. Chrs . M

BUZZ1397 profile image
BUZZ1397 in reply toMotal

No recommendation re brand but decaffeinated is my choice. I don't know how much EGCG is in a good cup of green tea. Why don't you give drinking green tea with a protein a try plus some vit C? Best wishes to you.

NanCyclist profile image
NanCyclist

Excellent information. Thanks.

Gwennie1 profile image
Gwennie1

Sorry for being so dumb, just can't think what is MP.

Bazillion profile image
Bazillion in reply toGwennie1

Think it's mucuna puriens

Alanjohn profile image
Alanjohn in reply toGwennie1

What is MP

BUZZ1397 profile image
BUZZ1397 in reply toAlanjohn

mucuna pruriens

BUZZ1397 profile image
BUZZ1397 in reply toGwennie1

mucuna pruriens

Gwennie1 profile image
Gwennie1 in reply toBUZZ1397

Are you in the USA.?Tried to buy some but was given the completely wrong order, sent me diet pills which I returned but left me about 130?dollars out of pocket plus extra to post them here to th UK.

Thanks for such a prompt reply,nth ought it was Mucuna.

BUZZ1397 profile image
BUZZ1397 in reply toGwennie1

Yes I live in the USA. Doesn't it just screw up the day when an order is not filled correctly? The brand of mucuna pruriens I take (not endorsing it or anything) is Source Naturals and the specifics of the product are: Mucuna Dopa, 100 mg-120 capsules (mucuna pruriens seed extract, yielding 100 mg Dopa).

Gwennie1 profile image
Gwennie1 in reply toBUZZ1397

Thanks for your reply.

roncourtney profile image
roncourtney in reply toBUZZ1397

If you take Sinemet will taking Mucuna Purins in addition simply double the amount of Levodopa going into your body? And if you just take MP, will the effects wear off over the years just like Levodopa?

BUZZ1397 profile image
BUZZ1397 in reply toroncourtney

Well I know that could happen if taking Sinemet and MP at the same time and you take the necessary inhibitors to push MP's levodopa across your bbb. I have taken Sinemet during the day as needed when away from home and without access to my MP. No problems encountered with that practice. Time will tell if the benefit of using all-natural levodopa is what it is cracked up to be.

Lynnie1 profile image
Lynnie1

Hi BUZZ1397 what brand of MP do you take? I give Ron Solaray 333 mg but not sure that's the best

BUZZ1397 profile image
BUZZ1397 in reply toLynnie1

The brand I have is Source Naturals. They seem to be reliably standardized. I have not tried Solaray yet, do you like them?

Lynnie1 profile image
Lynnie1 in reply toBUZZ1397

Well, they are enteric coated. I guess in order to bypass the stomach and go directly to the gut. The capsule is as hard as a rock. But I think they work. Ron has Lewy Body Dementia and it's possible some of his hallucinations are caused by the Sinemet. He just went on the Exelon patch because he has been seeing people all over his house, and a few in mine. I'm at my wits end.......I'm starting to break his 25/250 Sinemet in half for his 3x a day. And I give him MP sometime later in the evening.

BUZZ1397 profile image
BUZZ1397 in reply toLynnie1

Oh, you are a caregiver. I hope your Ron stops having hallucinations.

Lynnie1 profile image
Lynnie1 in reply toBUZZ1397

Thanks, Buzz, I'm really scared. He's a caregiver as well, for his adult son, and I'm praying I can keep Ron cognizant enough to handle him until we can get him in a group home. Ron would just never admit he couldn't care for him anymore until recently. And I really believe that the unending stress Rons under has worsened his condition.

faridaro profile image
faridaro in reply toLynnie1

May God grant you, Ron and his son strength, peace and comfort.

Lynnie1 profile image
Lynnie1 in reply tofaridaro

faridaro thank you, and may God bless you 🤗

carpark profile image
carpark

Thanks for the info! I just started using a small amount of MP and EGCG and am amazed at how much better I feel. I have wondered how I can cut protein out of my diet because I'm already underweight and don't do well without it.

BUZZ1397 profile image
BUZZ1397 in reply tocarpark

Me too, I mean aboout not wanting to cut protein out. Nutritionists claim we only need a small amount of protein daily once we are grown adults. Have you tried a natural (oil on top of the jar) peanut butter and fruit preserve on toast sandwich lately? Mmmm...that is my substitute for the eggs and bacon I used to have for breakfast.

annmariebaird profile image
annmariebaird in reply toBUZZ1397

Be very careful about going vegan - be sure you consult a GOOD nutritionist to get adequate protein!

Maja54 profile image
Maja54 in reply toBUZZ1397

Hi BUZZ I am person with PD for 11 years max on meds and DBS for 7 years. DBS put in 2x. First got infected and had to come out.The second had several infections fallowed by washouts total of 9 surgeries . Just little background , Well make long Storie short , now I only have 1/2 DBS left [ the Dr say the better more important ] on L side .The R side got infected again and so dit my batterie site so it had to be removed and pt on rite .

So after the long winded explanation ,do you know if I would benefit from MP and the GABBA?

BUZZ1397 profile image
BUZZ1397 in reply toMaja54

I do not know . Please except my heartfelt sympathy and best wishes for your improved health

I am the odd duck. I eat lots of protein. My body is craving Protein. I was 6 foot 0 when I was first diagnosed and 159 lbs. I am now 190 which is the heaviest I have ever been. Also thanks for the coconut oil info. It would seem to me that it is getting rid of that stubborn belly fat.

BUZZ1397 profile image
BUZZ1397 in reply toSerenity_finaly-1

I do not remember giving coconut oi info but that's probably because I forget where I am sometimes Hal. Hey Hal, what's the use in being normal? Its the crazy people in our lives that we remember. :)

Serenity_finaly-1 profile image
Serenity_finaly-1 in reply toBUZZ1397

INDEED !!!!!! the coconut oil was not from you specifically but a help non the less and I got that info. from this site.

HeartSong profile image
HeartSong

Hi, Buzz. Here we are one year after your original post in this thread. Are you still on MP only? Does taking green tea extract with a small amount of vitamin C still help after you've blocked the action of MP (or Sinemet) with too much protein? Thanks for all your good information.

BUZZ1397 profile image
BUZZ1397 in reply toHeartSong

I’m getting better at not screwing around with my levodopa by eating big protein meals but I still do it sometimes and I still use the vitamin C green tea extract method of helping it doesn’t help completely but I feel it does help. Except for those times when my shipment doesn’t come in in a timely manner I’m still using just using mp vitamin C fish oil and green tea extract. I take some other supplements and herbs as well to address pd. But the four I mentioned or basic treatment for me

karolmilk profile image
karolmilk

Where do you purchase green tea extract and how often/much do you take in a day?

BUZZ1397 profile image
BUZZ1397 in reply tokarolmilk

I order online from Swansons. The one that I get is decaffeinated the brand is source naturals it yield s 35 mg EGCG. So it’s really a small dose not much to cause liver problems.

akgirlsrock profile image
akgirlsrock

Hello, I have the same thing happen with protein, I'll take my cardopa/levadopa pills and wait an hour and eat protein and it will lesson my on time. The nurse said it shouldn't because my cardopa/levadopa is already in my system. Milk products really make me shake. How long do you wait to take mucuna when taking vit c/grn tea pills. I use the l-dopa derived from macuna it's white. I'm trying the inbreja inhaler, it works fast for off times, but I don't like the idea of inhaling levadopa dust into lungs.

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