We are thinking of putting together a recipe book which takes into consideration the difficulties/frustrations that occur when cooking and preparing food. We are interested to find out what you think the main difficulties are and how they can be overcome.
Also, it is often reported that certain foods interact with Parkinson's medication, so we are interested to find out what foods work well with medication and what the optimum time of day is to eat.
I'm interested in hearing more about this recipe book.
Very early days yet, will keep you posted!
I applaud the idea of a cook book. $ How will it hold up against the "mountain of cook books?"
Broaden its appeal to cover several diseases that respond well to diet.
I am interested in the cook book also. I am only interested in one on Parkinson's disease .
I think often one of the problems is actually wanting food. I used to eat Porridge with oatbran every morning for breakfast, but the past nine months or so I cannot. I have taken to squeezing a lemon and drinking the juice in hot water.
(It feels a bit like going to confession, ''say three Hail Mary's and suck a lemon''!)
Even when it gets to lunch time, I would not eat, but as it is compulsory I don't refuse.
I never really feel hungry until the evening, then I crave Yogurt.
Nowt so queer as folks, as they say!
A recipe book! I wonder?
Will it really be something new?
I don't want to spend time on complicated food that may be indifferent.
As long as it holds Body and soul together, what more can we need?
keeping yummy, good for p.d. (like coocnut oil) simple to prepare. that's my vote
I think the first step would be to make a list of what tools and gadgets are available to PD folks in the kitchen before you can look and suggest recipes. Pretty hard to measure when your having a bout of dystonia or eat soup when your hand is shaking uncontrollably due to tremor. The good news most folks start with their symptoms manifesting on the left side of their body ( don't know why when the substantia nigra is mid brain) and a majority of people are right handed. My other suggestion would be look at some of the more common drugs people are using for foods to avoid in a lot of the recipes. Why our cocktail of drugs varies there is also a lot of overlap, example Sinimet, Azilect, Requip, the Neuro patch. This is where some of us can tell you from their drug write-ups what is suggested for foods to avoid Example Azilect tells you to avoid aged cheese and chocolate. Lastly you need to research the recommended foods to avoid due to high protein content. I believe it was this site that put out an excellent newsletter onetime addressing this very issue and listed them.
I think it would be great but challenging. I spend all day trying to figure out what to eat and when. I also have painful IBS-C and follow a low FODMAPS diet (google it--hard to explain) . I got a cookbook which is interesting.. It has meal plans for the following: general, lacto-ovo vegetarian, vegan, low-fat, dairy-free!
The permutations are endless.
Is there an ap for that?
I love cookbooks! I would like to have one on what foods to eat while on c-levodopa.
One simple solution comes from Rancho Los Amigos - a rehab center for Vets. Constipation aid: 1/3 apple sauce - 1/3 prune juice - 1/3 bran (from any source - flakes - cereals - buds) = Blend together and take one tea spoon to table spoon every morning.
Note: I have compiled a complete list of 'PD Symptoms' of over 100. E-mail me with the words 'PD Symptoms' and I will send you the information... macbunch@hotmail.com
Any PD cookbook should include the information that protein should not be eaten at breakfast and lunch but then consumed at dinner. Mostly carbohydrates, veggies and light proteins at breakfast and lunch. Heavy protein consumption interferes with the body's ability to absorb and convert sinemet/madopar/mucuna pruriens/tyrosine (whatever dopamine producing supplement you are taking), into dopamine in the brain.
nutritionmd.org/health_care...
Secondly, the Mediterranean diet has been shown to be protective against PD and is a real healthy diet for PD (and anyone else for that matter.)
dailymail.co.uk/health/arti...
Central Nervous System inflammation is a major problems for PD patients and the Mediterranean diet has been shown to relieve the key inflammatory marker, tumor necrosis factor alpha, TNF-a, homocysteine.....:
What if we are approaching this all wrong?
Dietary Regulation of Dopamine, Vitamins and Minerals Demystified 
Getting Back To The Gut Of The Matter And Some Real Hope!
Eat Real Food and Protect Your Microbiome
