Afternoon Parkies. š. Just a quickie: should we all have one of these as an aid to curtailing the issues in our GI? Has anyone already had one? Has it made any difference to your symptoms removing the offending foods? Long shot but just interested.
Thanks in advance to all contributors.
Best, š
I had a food sensitivity test done in 2018 when I was first diagnosed. . It identifies foods that you are reactive to. It also checks for candida. I think it costs between $300 and $500. I didn't have any severe reactions. Eliminating the foods you are reactive to might help. All these tests are expensive and most are not covered by insurance. Hope this helps.
Thanks
my husband is the one with Parkinson's but I found out I have wheat intolerance and since eliminating wheat my situation has improved significantly
Curious lack of response here. I think itās worth pointing out that āsomethingā is distressing our intestines and this distress is being carried to the brain. It would be absurd to declare that this is the cause of PD as there are things going on at molecular, cellular and genetic levels, but itās not a bad place to begin! The food that your body is intolerant to might not be that of your neighbor etc. start personalising your diet methinks?
I take it you are aware of thisfoodmarble.com/how-it-works...
No. But I like the look of it. Have you bought into this Rich?
No, Adam. Not yet. I was about to push the button, had put my credit card details in, when Mrs WTP asked just how many gadgets I planned to buy that month. It was a fair cop. I'd bought a few, including a 180 helicopter and new transmitter. So I deferred it a month. Then the gloves came along and filled my day and I forgot until I saw your post
Good question. I think a kinesiologist is a good starting place; they can test for food intolerances (although you might need to take a healthy friend/partner to surrogate for you for the testing - I'm not sure how PD affects muscle testing - they will advise). A kinesiologist can also discern all sorts of other stuff going on in the body, and see in real time which supplements would strengthen it and which weaken it. I'm booked in for next Saturday!
In the past I've also seen naturopaths who have Vega-type machines that test for food sensitivities. I would say that many are just passing intolerances - the body gets fed up of eating, say, endless tomatoes and needs a break. When you retest after a few months pause, the body is fine to have them again. Some however it seems to want a loooong break from!
We do know that a leaky gut lining seems to be part of PD so I think eliminating those offenders and eating a diet that heals it, and that rebalances the biome, is really important.
Gluten is an obvious place to start as it is irritating to the gut. I also note that in Dr Laurie Mishley's large survey of those who are doing exceptionally well with PD, there is a strong correlation with eliminating gluten. Ditto sugar, which imbalances the biome. Her video is fascinating if you haven't seen it - lots of other great tips from surveying those who do well!
I think this was my starting point actually. Good luck with your search. šš
We just got some advice from a Functional medicine guy who recommended to try an AIP diet and go through the process of reintroducing foods group by group to check for sensitivities.
Iām not sure yet, hubby may be too advanced in the PD to handle it, but I think weāre gonna try it. We tried something like it 8 years ago and he cramped severely on reintroducing eggs. But it was too hard to keep them out of his diet, so all of that fell by the wayside.
Anyway, getting desperate here so we try a lot
of things.
Iāve done them a couple of times. There seems to be some debate in the naturopathic/functional medicine/integrative medicine communities about how helpful it isā¦
I think it can be useful in identifying certain foods that are particularly problematic by doing an elimination diet for a few weeks and then reintroducing one by oneā¦ but the goal is to have a diet with a lot of different foods, not restricting long term except for foods that clearly cause you problems.
I went through a period of constipation with LOTS of gas (toot toot). Reduced FODMAPS significantly, and did fairly well at excluding most of the foods on my NO list. At the same time, I got better at using digestive enzymes and Betaine HCL. And Iāve been taking a probiotic called Megasporebiotic, as well as sacharomyces boulardii. Also eating MORE fruits and veggies and fermented foods.
My digestion has improved a lot. I recently did a microbiome test BiomeFX, and my results are now solidly in the ānormalā category, much better than before. Things are moving better (still use Miralax a couple of times a week). Havenāt gotten my docās interpretation yet.
Well done you! Did your various intolerance tests produce similarārisk foodsā I wonder?š¤
I think there were a few foods in common. Different companies and a few years apart. I donāt think itās unusual for sensitivities to change over time.
Hi Jeeves. If you are going to have DBS done for sure, none of this should matter anymore, right?
Food sensitivities can affect your health in general, inflammation. And DBS doesnāt stop PD progression, so itās still important to find the source(s) of inflammation and work on them.
Absolutely agree with you there Adam. Key to eat a varied and as non-processed as possible diet and if known foods are inflammatory, keep them out of your diet. PD will progress of it's own accord which is nothing to do with keeping fit and healthy as possible by what you ingest and movement. I'm allergic to Birch, and have a secondary allergic reaction to all raw fruit with a stone or pip, if I've been around birch - so it loads on top of it. A good Dermatologist will pick up all of this when doing a proper skin scratch test, not sure what you have in the UK, but it sounds like many of the Allergy tests described are online by saliva or blood? I'm not sure actually, so I could be wrong on that.
Thanks Honey Bunny. After researching this it seems as if the medical community are in two minds about the wisdom of such an assessment. I think the sanest path would be to just eat proper whole food and avoid virtually anything that our corrupt and misguided species has had anything to do with. Even then the vegetables and fruit have all been tainted and covered in chemicals! š¤š
Welll, yes that is my thought too, do we really know that organic is organic these days and what is good for us now, next year won't be. In the end we can only be positive and believe that following a varied diet is good for us... obviously plus the fermenteds as long as they are NON pastuerized - wink wink... sigh !!!
My hwp had his microbiome tested and takes personalized probiotics based on the results of the test. I would recommend this
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