I was diagnosed with seronegative RA four weeks ago. I had severe fatigue preceding the joint pain (started in my feet- 9/15). All of my initial work up was negative except ongoing low ferritin. Iron infusion in April...the usual story of progressive joint involvement/pain, 5 month wait for a rheumy appointment etc. Prior to this devilish development I was a runner since he Reagan administration and was a reformed triple 'type A'. That was then, now is another story! The MTX wipes me out for a day even with folic acid, starchy meal when I take it and super hydrating before and after. I have not been sick before other than anemia. No surgeries/hospitalizations other than childbirth either. I hate being a patient, not running...the fatigue is like Alice down the rabbit hole where everything is upside down and there's no easy way out.
So, enough of my complaining! Maybe someone can shed some light on whether there are things that worked better for them to cope and if there is anyone that was able to return to running with RA. When I asked the rheumy if I could run, she said,"let your body be your guide". Well, that is the wrong thing to tell someone who used to run 100 mile weeks. I do feel like I have great doctors so far( PCP, hematologist, rheumatologist, PT) for the journey. Thanks, Dee