Posting for friend , forgive me if details sketchy.
She has ankylosing spondylitis ,UC and Crohn's. Needs surgery for stricture, fairly/quite urgent. Has stopped infusions for AS on advice so can be ready for surgery. No date given.
As result now has bad dactylitis in hands and feet .
I'm wondering if she should go back on infusions (though no doubt knowing her luck she'd probably go to bottom of waiting list) and wait either for a date for surgery ( needs 6 weeks notice I think to come off infusions ) or to risk emergency admission when stricture becomes critiCal.
Her quality of life v poor, limited mobility and use of hands. Pain, exhaustion.
Any thoughts ??