After what seems to have been the longest 2 years, I have finally been diagnosed with Crohns Disease . It sounds very strange to be pleased, but I was over the moon when the consultant rang and told me.
Ok, the treatments start ramping up now and more tests have to be done but, am not crazy! My symptoms can no longer be mocked as just eating wrong foods or our bodies changing.
I know there is no magic cure, but all we can do is try.
Did anyone else feel relieved?
Thanks,
My crohns dx was not like yours, but I do understand what you are saying. I've seen many people have symptoms for several years with normal testing. Sometimes it just takes time to manifest itself. Good luck with getting on the proper medication to treat the disease.
Yes I felt relieved to find out I had MC. Diagnosis of this disease seems to take forever. I lost so much weight and felt distressed when a GP suggested I was suffering from anxiety! All you need now is to find the right medication, and learn to live with and manage your symptoms. Good luck and hope you get back on the path to good health.
I am glad you are relieved that at least you now know what you are dealing with. Unfortunately it can be a hard road forward.
I have had Crohn's for 40 years and 3 operations later am stuck with a fair amount of pain from adhesions from previous operations, which the surgeons will not touch, a stricture, narrowing, on a MRI 2 years ago, that seems to have "disappeared" from the last 2 MRI's, still getting partial blockages, on a low fibre diet.
Treatment has changed a lot over the years, the length of the scar from my first surgery compared to the last. I have been quite lucky in that there has been a good 10 years between operations and they have always only taken less than a foot of my small bowel each time, so it is fairly intact. Then there are people I know with Crohn's who have been dealing with it and the next time you see them them have had a flair up and they have had to take almost all out and they are on a bag.
You say 'just eating wrong foods', well there will be foods that aggravate your bowel which you will just learn to cut out, thankfully just the one for me, peanuts, okay with a couple in a biscuit, but not a bag full!
You just have to deal with the bad time, the NHS does nothing quickly especially these days, and make the most of your time when it is in remission.
Best of Luck.
My crohns site is high up just under my stomach. Took ten years to diagnose, The relief of finally knowing what I was dealing with was immense.
Not Crohn's but inflammatory arthritis and absolutely normal reaction - you know when there's something wrong and being told there isn't only stops you getting help. The disease isn't welcome, but the diagnosis is.
Now I am starting to feel like I might have an inflammatory bowel condition related to my autoimmune arthritis and I'm going to possibly go through that process again...
I am glad that I am not the only one to feel like this. I have had a fair few ask what the difference of knowing is, but just to know I am not crazy is one of them.
Sorry you may have to go through the process again. My left hand knee and hip have just started getting stiff and hurting when I first move and my consultant said that the intestine was possibly not going to cause me the main issues. This is all part of it. It’s not the greatest but at least it’s an answer to the flare ups and maybe now there will be some way to calm them down.
I count myself lucky that I don’t have it as serious as others.
I hope you get things sorted soon. 😃
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