Crohn aches: I've been battling Crohn's... - Crohn's and Colit...

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Crohn aches

TROSET profile image
8 Replies

I've been battling Crohn's and celiacs for about 5-6 years now. Sometimes when I have a flare my whole body feels like I have been run over by a truck. Does anyone else have this pain and how do you combat it?

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TROSET profile image
TROSET
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8 Replies
MWZ3 profile image
MWZ3

I’m on salazopyrin tablets. I can take between two and eight as needed. They seem to manage it for me.

TROSET profile image
TROSET in reply to MWZ3

My gastroenterologist is actually pretty rude and ignores everything I say. I am looking for someone new. She basically thinks I need to just suck up all the symptoms that go with it and deal with it.

Valerie0106 profile image
Valerie0106

it may be caused by generalised inflammation in the body so targetting inflammation would help if so. I have been seeing a medical herbalist because I cannot risk any more steroid treatment due to the state of my bones. It is helping with the direct symptoms of my UC but is helping a lot with general body pain.

TROSET profile image
TROSET in reply to Valerie0106

A medical herbalist may be a good idea to try. Thank you. I currently take a heavy dose of mesalamine for inflammation but it only helps so much. It keeps everything ok until there is a flare up.

Valerie0106 profile image
Valerie0106 in reply to TROSET

me too - I cant get off the highest dose.

Eixor57 profile image
Eixor57

whenever I had a bad flare I would sometimes get a fever, chills, and body aches. It’s your immune system fighting inside your body. Takes a lot out of us. Rest, Tylenol, vitamin D. But stopping the flares is best. I haven’t had a flare for years. 🙏🏼

012703060610 profile image
012703060610

Please look up LDN as a treatment. It has vastly used in the UK for Chrons and other autoimmune issues....heck even Parkinsons. While I don't have Chrons, I have other autoimmune issues with a paralyzed gut.

TROSET profile image
TROSET in reply to 012703060610

Thank you I will definitely look into that!

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