Chrons long term medication

[Mimbabe]

Is anyone else taking mercaptopurine 25mg daily long term for Chrons?

[Alien65]

Hi I think that is a chemotherapy drug for some cancers and used as an immunosuppression for crohns like azathioprine which I was on for crohns for 8 years

[Mimbabe in reply to Alien65]

Thank you do you mind if I ask did it help for all that time and why you stopped taking it? I don’t know what else there is available.

[Crohnwarrior in reply to Mimbabe]

I’ve also been on mercaptupurine and azathiroprine I couldn’t tolerate either, they made me feel so sick no matter what time of day or night or took them, they also made a lot of my hair to fall out, now on Ustekinumab but unsure if it’s causing me hold up

[Alien65 in reply to Mimbabe]

Hi I had problems with them was put on them after surgery it was work out on mg of tablet per pounds of body weight

[Alien65 in reply to Mimbabe]

Sorry had no problems

[Mimbabe in reply to Alien65]

Thank you

[Mimbabe]

Hi everyone just thought I’d do a quick update my pain level is hell my back and leg pain is unbelievable just seen consultant and I have to have another scan then eventually go to a chronic pain clinic but that’s not why I’m here so my update here is I’m my blood test is ok so still on 1/2 pill mercaptapurine every day along with everything else and still doing either constipation or diarrhoea so it’s a good job I hardly ever leave the house, but every time I have seen my consultant he just tells me unfortunately this is normal for Chrons is it?