How long to diagnosis?: It took 1... - Crohn's and Colit...

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How long to diagnosis?

Xzbv profile image
Xzbv
10 Replies

It took 10 weeks from first symptoms to diagnosis and treatment of microscopic colitis via a colonoscopy. The Budesonide has been 100% successful although I understand that symptoms may recur. Talking to my GP l was asking him why it took so long but he told me that I was relatively lucky and the average time taken was 3 years! I expect where you live might make a difference. I live in Central London. Where do you live and how long did it take to get a diagnosis?

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Xzbv profile image
Xzbv
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10 Replies
Dawn43 profile image
Dawn43

Hi Xzbv

My symptoms started around this time last year. I finally got round to seeing the doc in Jan this year and was fast tracked to rule out bowel cancer. Had a colonoscopy in Feb and was given a diagnosis of proctosigmoiditis.

Gastroscopy in April showed a healing ulcer and am having another gastroscopy on 9th july.

UHNM/Royal Stoke

Dawn x

bantam12 profile image
bantam12

How about nearly 30 years to get a definite diagnosis !

Skye22 profile image
Skye22 in reply to bantam12

Took me over 30yrs to get a definitive diagnosis. Had 13 ops and countless tests and seen a variety of consultants to get my diagnosis in 2015.This is my experience with the NHS cannot comment on others experiences but would hope that advancements within health care would drastically improve timeframe of getting diagnosis.

bantam12 profile image
bantam12 in reply to Skye22

Not sure things are any better now with no appts and disinterested medics, my Gastro team are good but it’s still hard work getting answers.

saj12 profile image
saj12

Around 5 weeks from first symptoms. I did invoke BUPA through work to get the colonoscopy quickly.

Xzbv profile image
Xzbv

Thanks everyone. So that’s 5 weeks to 30 years! If you can afford it or get it through work then an early colonoscopy which includes biopsies would be well worth it. I also had 2 different poo tests. And it was the second one which triggered the colonoscopy.

Lo181 profile image
Lo181

Could I ask what your symptoms were before being diagnosed ? I’m currently been referred and having all sorts of symptoms and I’ve had abnormal calprotectin levels too

Xzbv profile image
Xzbv in reply to Lo181

My symptoms were watery diarrhoea 4 - 10 times a day. Have you been offered a colonoscopy?

Lo181 profile image
Lo181

I’m currently pregnant at the minute so they said I can’t have one yet until after Jan I keep having brown mucus urgency to go stomach cramps constipation lose bowels and more Driving me mad just waiting on my next calprotectin test come back see what my levels are then such a worry waiting this long only gonna get worse my symptoms went for 2 months and now there back again and doesn’t look like it’s gonna go jus yet

Xzbv profile image
Xzbv

Ask for a “virtual colonoscopy “ via a CT scan.

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