More help needed

[Grandson1]

As I’ve said in earlier posts after being diagnosed with indeterminate colitis the doctor now thinks it’s crohns. Just recently apart from the expected symptoms Ive been feeling really ill. The only way to describe it is it’s like a virus but it’s not. Headache dizzy nauseous crippling tiredness sore mouth Had it for about 3 weeks along with the usual symptoms of colitis. Is this how crohns feels?

[FRreedman]

It can do, I'm afraid. Whenever you feel under the weather, it is normally, worthwhile contacting either GI team of GP, especially with the immunosupressants you are taking. The good thing is, I found, if I suffered with viruses or bugs, the Crohn's seemed to keep quiet.

[Grandson1 in reply to FRreedman]

Thanks for reply. I feel so ill at the moment which has been going on for about three weeks I think I would rather have the crohns playing up

[HJ10HMO in reply to Grandson1]

Contact your team, I suffered terribly taking Vedolizumab. Thought it was just side effects but it actually made my Crohns worse. Not all meds work for individuals and you may have to try a few to find one that works for you.

Don't suffer.

Best Regards

Mo

[FRreedman in reply to Grandson1]

If you, really, feel that bad you should contact your GI team, and they should be able to tweak your medication, to make you more comfortable.

[Eixor57]

Sounds like side effects of a medication.

[Gjkas]

Hi , Several years ago I had a colonoscopy and was told that I had chronic Diverticulitis query, Crones Disease. I wasn't given any medication just told not to eat fried foods, as this will only make the condition worse.

Well for the past 2 years i have been in Agony with stomach cramps, nausea and feeling so very, very ill. Been to my G.P. WASTE OF TIME.

Was taken into HOSPITAL several times since then. The last time I was rushed into Hospital it was because of a suspected Stroke, but I did tell them that I had Fibromyalgia and that was why I couldn't walk very good.

Anyway when I was in there I had an Ultrasound, then an MRI, then after all that i had to have a MRCP Scan.

The Consultant came to see me and told me that I had an Enlarged Liver, Blocked Bile Duct, Cyst On The Pancreas and Gallstones. I told him that my Mum had all that years ago. He asked me what the outcome of my Mum was, and I told him Pancreatic Cancer. She passed away 6 months after diagnosis.

The other Doctor said ( yes well this is why we need you to see an Oncologist or Gastrointerologist as soon as possible, ).

All I could say was, I'M GOING HOME..

Anyway I came home and this morning I had a letter from the hospital asking me to ring them to make an Appointment that was convenient for me.

My Husband sorts out all my Appointments for me because my head just doesn't belong to me half of the time because of the Fibromyalgia.

I don't know what to do about the letter ?Ive hid it from my Husband because he'll be on the phone straight away.

But I'm so fed up of being in Hospital. I just don't want to be in there anymore.

I know i could be thinking the worst,

BUT WHAT IF I'M NOT ?.

🤞✌.Im gonna keep my fingers crossed and tell him tomorrow.

He's as good as gold. I'll let him have a good nights sleep tonight. 💤💤💤.

💏 .This is Me and My Hubby.

Goodnight Godbless Everyone. Gjkas x.