Will i have ibd: When i was three i had... - Crohn's and Colit...

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Will i have ibd

Leigh6873
Leigh6873

When i was three i had a twisted bowel with gangerine and was under consultant until i was 16 and yrs have passed with loose bowels being normal and believed all the other issues with pernisous anemea and b12 jabs to be a vitamen i needed but never questioned why and became normal .Now due to meeding med records for court it says i had ileocolic resection at age 12 this is why im assuming i have ibd but i cannot recall this and parents cant remember this as it was along time ago in 1976-1989 when i was discharged .I have had alot of issues with anxiety and agrophobia and after three yrs i feel iv blocked this out as alot of bits has come back over time as alot of issues with me and family over mental health and their view of this and that im convinced it is due to b12 not working or absorbing and finally have a app with specialist in four weeks .Iv no idea how to approach this so will he do a scan and know if iv got ibt or short bowel as this means i had two resections and malabsobtion is stated in notes also sorry so long i did have alot of time off school and always had ulcers in my mouth but thought i was run down thankyou x

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willow24
willow24Administrator

IBD is an autoimmune disorder and a number of 'faulty' genes have been identified. You cannot get IBD from say a stomach bug or twisted bowel, however if you have the faulty genes these can be a trigger for the genetic code to become active and IBD develops.

So its a question as to whether you had IBD in the beginning or not - was the twisted gut due to inflammation from IBD.

You are entitled to get information from medical records.

Do you have inflammatory blood markers checked? and have you ever done a stool test called faecal calprotectin?

Leigh6873
Leigh6873
in reply to willow24

I had gangarene so had bowel removed at age three but my notes say i had a ileocolic resection at twelve i suffered servere mouth ulcers and dioreah as i was growing up and always under consultant it also says malabsorbtion but doesnt state ibd and dont remember being told but since time past iv always assumed dioreah to be normal due to op and knowladge of things medically have moved on but as nobody is aware would a scan reveal how much small bowel is left due to being so tired and mental heath issues being to do with absorbtion theres alot of personal reasons thats lead me to this point thanks

willow24
willow24Administrator
in reply to Leigh6873

malabsorption etc occurs when a large segment of bowel is removed, and the diarrhoea is likely to be from that also, it is often referred to as short bowel syndrome, so it is likely the cause of symptoms and not IBD.

If it was IBD they would be checking inflammatory markers etc from age of 3, and you would likely of been on IBD medications at some point.

Your medical notes should have all the information regarding the operations included an estimate of length of bowel that was removed

Leigh6873
Leigh6873
in reply to willow24

Thanks thats my thinking the short bowel condition its because it says volvulus in 1976 and iloecolic resection in 1984 and assume when i started b12 for pernisous anemea and i think its not asbsorbing due to other factors relating to my intestine for some reason and hope he can find it in notes so long ago thankyou

willow24
willow24Administrator
in reply to Leigh6873

Youre more than welcome hun, I hope they find the answer for you x

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