Hi everyone,
I’ll start my story from the beginning.
I have always been ill and always suffered with debilitating cramps, low energy, sickness, constipation, etc.
When I was 17 I finally thought “maybe this is more than ‘ibs’” and started complaining to the dr.
I went through gastro and had the usual tests (sigmoidoscopy, colonoscopy, endoscopy etc). The colonoscopy was so bad I was screaming in pain after double the sedative but nothing was found.
At age 20 I was diagnosed with endometriosis and it all made sense. I’ve had several surgeries since.
During op no. 4 they found endo on my lower left side bowel and higher right side bowel. They couldn’t tackle it so I waited a year for a colorectal surgeon.
During that time I was hospitalised constantly with constipation/blockage and lived off a liquid diet.
The endo on the bowel was removed in August 17, but I’ve since had the above symptoms plus a new addition of sharp rightside pain that eases when I push it in.
The drs are convinced they took all the endo and tbh I don’t have any other endo symptoms desperate to the bowel stuff. I have been rereffered to gastro too.
What’s really strange is that I’ve noticed when I am ill my eye also become inflamed!
I feel like I have ibd symptoms but the colonoscopy ruled that out. Could it be wrong? (It was about 9/10 years ago if not more)