Rest

[Foyer]

Anyone else feel frustrated when others don’t seem to understand that you just need a little extra rest? Chronic illness can be quite draining! Hope you all are getting the rest you need during the holiday rush

[willow24 Administrator]

Definately! Unfortunately I have a close relative in hospital - an hours drive away, and have to juggle visiting with my shifts at work. Hopefully be able to have alazy pj day in the new year,

Merry Christmas x

[Angep]

The problem is because they don’t have an illness that causes such fatigue they can’t possibly understand it!!! My kids get it but no one else does!!! It’s just how it is!!! 😬😁

[Hobbits]

Most definitely! Many chronic illness are not understood by this who do not experience it.

Fatigue is one of those things that sounds benign but can be debilitating.

When one says they are tired or fatigued, people relate that to how they feel when tired or fatigued, and thinks it’s not to bad, just get some rest.

It is frustrating cause it’s tiring really explaining it to someone.

[SORRELHIPPO]

Most people do not seem to understand, anyone who has pain that is not under good control do seem to understand, I have a good friend with me for Xmas and New Year, does not care if I have not vacuumed, or (as I am a cricket lover) up all night and do not speak to her until nearly lunch time!! She has severe pain in neck and shoulders, so has fatigue herself. The people I feel I must keep in touch with, regardless of attitude (not many!!) I limit their visits, not only in frequency, but in length. When I say "yes I would love to see you on Sat," I specify, not before 11.00am and usually add that a couple of hours will be enough. I am no longer polite, if fatigue washes me, I just yawn, and say that I need the loo, and then to go to bed.

Having B12 injections has helped a little, so I know that the first couple of weeks after them I can do more and so I do more of what I enjoy, not what I ought to. I am also lucky in that I do not have a family that need things doing for them, so can be very selfish!!

[Anniemouse]

Hi i haven't been on here for a while , but people don't understand how tired i get and the impact it has on everyday life.

I was on Humira which really helped fro a few years , then i had a blockage and ended up with another bowel resection , now awaiting to start some new meds

Everyday is a struggle but i think if loved ones were to understand the complexity of the illness life would feel easier .