Week 1 day 1 eeekk

Week 1 day 1 eeekk

Hi all, Just been sent this way so I can shift my bum off the sofa and start making the changes I have wanted to make for so long and kept finding excuses so put it off. My motivation is to be ready and able to run 10k early next year for my twin nephews and niece who have all recently been diagnosed with a rare terminal illness (Batten Disease).

So today is the day I make a start :/ I will find it so difficult as even running up stairs gets my out of breath.

Any tips would be great, look forward to sharing and reading lots of posts from everyone x



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24 Replies

  • Oh my goodness. I just googled Batten's Disease. What a terrible thing. Three children? I can't imagine how any family would cope with that. You have my deepest sympathy.

    Still, running to raise money and awareness is an extremely laudable reaction, so the very best of luck.

    Keep coming to this forum for encouragement and support. xx

  • It is awful, it's very rare and for 3 siblings to have it is so cruel. They will be my motivation.

    Thank you, I will be a regular on here.


    That's the children's support page, I haven't told anyone I'm doing this yet, so will see how I go for a few weeks :)


  • Welcome and good luck! :-D You've come to the right place.

    My tips are: Take it slow, don't compare your progress to others - we're all different and post if you need any advice, cheering up or want to show off your most recent great achievement! :-D

    I've just looked up batten disease, oh I'm so sorry to hear that, how awful. I think it's great you're hoping to run for their cause. Good luck Tina :-)

  • Great tips, thank you :) Will let you all know how I get on later.

  • Oh Tina, I have never heard of Battens, so I have just googled it. That is heartbreaking, the poor children and your family , Im really sorry, that is so sad.

    Good Luck in your quest and please keep posting as you will get lots of support on here xxx

  • It is an awful disease, and myself nor anyone I know of have ever heard of it until it hit our family.

    Thank you, feeling less nervous about it all already :) xx

  • How awful! I had to do the same and Google it and can only add my voice to what useit and mimsickle have said. My heart goes out to you all xx

    Advice - just take it slow and steady and listen to Laura. She will become your best running buddy.

    If you feel like you are struggling at all just go even slower. I remember times when I swear I could walk faster than I could run but just stick with it if that happens.

    It takes time for your body to get used to running so be kind to yourself too.

    Remember to stretch after your run as that may well help with any potential aches and pains.

    If you are going to run outside then remember to look around you. It's a beautiful world out there and worth taking in ;)

    And most of all... enjoy it.

    Best of luck and looking forward to seeing your regular posts xx

  • Thank you, we'll just from this post more awareness has been made already :)

    I live in the beautiful Forest Of Dean so I will most definitely take it all in. Xx

  • Just follow the programme, take the runs nice and steady and breathe deeply and slowly too. Not rust the programme and take rest days because that is really going to help you reach week 9! If I can, u can for sure!!

  • Thank you. Great advice. :)

  • I really rested on non run days as the runs got longer - electric blanket on, power napping, hard work being an athlete!! Rest is all part of it, that's what I think! Helped me to tackle the next run. Julie

  • I will keep that in mind :)

  • had to google like the others, its so unfair, best of luck raising awareness.

    the advice on here is superb.

    Glen x

  • It really is. It's all about helping them make special memories now and getting the awareness out there. X

  • What a horrid illness!

    I've just made a small donation to justgiving.com/battendisease, but if you could set up your own justgiving page and publish it on here, perhaps we could contribute directly.

    Keep posting, we're right behind you and your little troopers.

  • Hi that's so kind thank you. Our page is Gofund.me/h28yew

    Wasn't sure if I was allowed to post it. Feel free to share it about x

  • I've also just looked up, what a horrible conditions, you and your family have my deepest sympathies.

    I agree with the suggestion to set up your own justgiving page (and post here), I'm sure that will help keep you motivated and help your family and others at the same time.

    As to the challenge, personally I take each run as it comes and just remind myself even if I was only to run a few extra steps each time, that is still progress, after all that ol' hare didn't win in the end did he! Having said that, it's actually easier than you expect in my experience, I mean it's not easy, but it is very rewarding and satisfying, and feels less daunting the more you do.

    Keep us posted with your progress

  • Thank you, the children's donation page is Gofund.me/h28yew

    I will make a new post up when back from my 1st run!

    Thanks for the great tips

  • Thanks, I finally found it but for the attention of others, the full address is: gofundme.com/h28yew

  • Thank you, I will use full web address when I do the post :)

  • Take it nice and slow and steady. Obey Laura to the letter and she will see you through. Your family must grief stricken, but this is a really positive way of reacting to a terrible situation.

    We'll be here cheering you on, so lace up those shoes and go for it!

  • Well now I'm also aware of Batten Disease. And it's horrible. I suppose the best thing one could hope for is some kind of gene therapy cure? Might be something the Bill and Melinda Gates Foundation might be interested in. (They fund research that wouldn't otherwise get done; cures are just less profitable than lifelong treatments, so all the investor funding tends to just naturally flow away from where most of us would like it to be - until we vote with out pockets, that is).

    Good luck with c25k. I think it might end up giving you a little space where you can just become nice and simple, and free of worries for at least a few minutes, and it'll boost you by making you fitter (which feels healthy, to split a hair).

  • The awareness really helps, so I'm glad a few more people now know about it, There are studies going on, but they cost millions, so we are trying to do our bit by putting on events to raise awareness, raise funds for the children and donate to the BDFA who help support families who are affected by Battens.

    I will look into Bill and Melinda Gates Foundation.

    I feel so much clearer just from my first day :)

  • I'm so sorry to hear that, that sounds dreadful :-( But good for you starting the plan! Take it nice and steady, listen to Laura, and make sure you take the rest days, they're so important otherwise you could get injured. The plan really works, I graduated a couple of weeks ago and on Wed I ran for 40mins non stop, I never would have thought that I could do that! So best wishes for starting the plan and do update us in your progress here :-)

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