I the past 7 days I have learned a few things - COPD Friends

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I the past 7 days I have learned a few things

Feelingblessed2013 profile image

Saw my pulmonologist last Thursday. She gave me a new nasal spray for my sinus issues, a good thing. Said my remaining lungs sound clear (I have lost 2 lobes to lung cancer), another good thing. She wasn't happy about the hip pain I'm still having (hip replacement was 6 months go). When she asked about exercise, I told her I walk as much as I am physically able. She suggested pool aerobics. She asked about my next CT scan and appointment with my oncologist. I told her my next scan is not until September, and I am no longer seeing that oncologist. I told her I went back to Roswell for my cancer care, and my oncologist said because it has been over 2 years since my last cancer diagnosis, it is safe to push the scans out to yearly (apparently the new thing is to go from when the cancer was found, not from date of surgery). My pulmonologist said that that's not how she would do it. She was not happy that I left the local cancer center and asked me why I switched, I just told her that I lost faith in the local radiologist. I should have said that if the cancer comes back a third time I want access to the best cancer care available, and that my oncologist at Roswell is a lung cancer specialist, my old oncologist is a hematologist/ oncologist.

On Monday I saw my primary care and was told my right hip pain (replaced hip) is the bursitis acting up. I really need a cortisone shot, problem is that most doctors won't do a cortisone shot in that hip because of risk of infection, so he put me on a steroid hoping it will reduce the swelling.

He also told be the shot in my back that my orthopedist wants to send me for probably won't do any good because the pain/tenderness in my back is because my SI joint is out of alignment. He also told me that I need my left hip done, top of the joint looks okay, bottom not so much.

Oh, and to pile on to all of this, hubby is getting a shot in his back on Friday hoping it will help his back pain, but he will most likely have to have his SI joint fused. He has Lytic Lesions in his left hip which has left holes where bone should be, but the worst one is at the SI joint causing the joint to weaken. We also have to find out what has caused the lesions. The only positive in all this is that the lesions haven't changed since they were first found 4 years ago, which is a good thing because we were knew nothing about them until recently.

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Feelingblessed2013 profile image
Feelingblessed2013
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10 Replies

I hope you are doing okay. I wasn't looking for answers, just needed to vent a bit, maybe have my little mini pity party. Now I can stop thinking about it, and go bake some cookies. But thank you for your concern/care.

It is what it is. This too shall pass.

Don't they though. Made some last week from a new recipe, but I wasn't impressed with them.

I like to keep busy, and now that it's cold out, it's baking season.

SusieJo1948 profile image
SusieJo1948

Katherine you know your not to get sicker than me. Straighten up because I'm sicker than you ha ha ha. I think were a bunch of sickos who try to make everyone else feel better l hop you feel better and smile . Love susiejo1948

Feelingblessed2013 profile image
Feelingblessed2013 in reply toSusieJo1948

You just made me smile and I thank you. I know you are sicker than me, my momma always used to say that no matter how bad things got, just remember there is always some out there worse off than you or sicker than you. I only posted all this crap because I needed to vent, to people who would understand at least some of it. Lately I've been feeling like I'm being pulled in too many directions and I just want to scream, so I put all the crap in writing instead.

But you are right, we are all a bunch of sickos, just doing our best to make others feel better.

I hope you are doing well.

Love, Kate (my friends call me Kate)

joyful4u profile image
joyful4u in reply toFeelingblessed2013

Kate, you are going through a lot all at once! I feel for you but thank God you're surrounded by a bunch of sickos, :) myself included. You have a great attitude & that's helpful in getting us through the tough times. I want to agree with aqua aerobics. I do this twice a week & find it to be the most helpful of all exercises. It's easy on the joints. I'll be praying for you & your hubby, as you take one day at a time. Take care & God bless.

Feelingblessed2013 profile image
Feelingblessed2013 in reply tojoyful4u

I'm thinking of joining a health club in January, but the idea of using the gas to drive 30 miles round trip 3 times a week makes me hesitate. If I had the money, I'd have one of the recumbent bikes like they have at PT. I would be on that thing every day. Probably kill my knee, but I'd lose some weight.

On a positive note the steroid my PCP has me on seems to be helping. I was able to sit at my kitchen table this morning without pain.

I will keep you in my prayers as well.

xx11xx profile image
xx11xx in reply toFeelingblessed2013

Wow! You guys have a lot going on! You are one tough lady, keep up the good work. You really helped me, nice to know there is someone out there that will listen. Seems like this is a good place to vent, most of us understand what we are all going through. I hope its ok I added you to my prayers.

Feelingblessed2013 profile image
Feelingblessed2013 in reply toxx11xx

Thank you for adding me, I will take all the prayers I can get. We have been through worse, we got through that and we will get through this. It seems like if it's not me, it's him. The last 6 years or so, we seem to be taking turns. I think I jinxed him after me hip surgery, I looked him and said "your turn". I didn't mean it, we need to stop falling apart. But now it looks like he will have to get his SI joint fixed, then when he is healed, I will get my right hip done (maybe).

You are right, this is a great place to come to vent.

I have no idea how I helped you, but I see it as a high compliment, and to that I say thank you.

Keep in touch, let me know how you are doing.

Pegstags profile image
Pegstags

I use nasal spray and i like it. It works well for me. And walking seems to help my arthritis. So maybe pool arobics would help you out. 😊.i dont know about cortizone shots. Ive tryed them in my knees. It helped one not the other. I dont think ill get them again. But i walked home after the shots and it leaked out of the 1 knee. So i probably screwed up. They hurt to get them. And for it not to work forget it. Good luck with everything!!! I hope your cancer doesnt come back. And im praying for both you and your husband. You both have gone through a lot.

Feelingblessed2013 profile image
Feelingblessed2013 in reply toPegstags

Thanks Pegstags. I have been using the nasal spray as she directed. It dries everything out, my sinuses stop draining down the back of my throat. But it really dries everything out, to the point that it gets uncomfortable. Now I wake up with a sore throat, and I'm snoring so bad I'm waking myself up. I think I may need to go back to my cpap machine and just deal with the air filled abdomen.

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