COPD

[Naebreath]

Struggle becoming almost impossible, end stage COPD. Housebound. No support. Under 65.

[Hidden]

Hang in there and neve give up God is by your side prayers

[Naebreath]

Thanks, bless you. I pray at night, sadly, that I don't wake.

[revagayle]

I am very sad for you. I hope you don't give up & things turn around for you. Take care & I hope you somehow can find some peace. Gayle

[Naebreath]

Thank you for your kind words.

[lynnely51 in reply to Naebreath]

My mom has end stage COPD for a couple of years, though it is a very slow decline for her, and I almost lost her a year ago, she goes up and down even now. She can stay in for a week and get very slow, and next thing she is out shopping by herself with her cart and portable oxygen. she is on 31/2 liters, how about you? May I ask where you live? Have you tried hospice? They are very helpful and will stay with you for a long time. They have quite a bit to offer. I'm not sure I can help, but please feel free to email me at [e-mail], My name is Lynn. God Bless all of you!

[sandytarson in reply to lynnely51]

i live in syracuse ny. i also have end stage copd. how old is your mom? i was told that in 2015 of october. i was still working until then. i got got sick and was told not to work anymore. i am 61. i also am on 3 liters of oxygen. i just recently got sick with pnemonia first time in the hospital for 8 days. not the the first time for pnemonia. had home care when i came home they gave me hope if i did what they told me to do. exercise and do breathe exercises to help your lungs. i need to also go out and do things they say you need to do. i have been fearfull since i was told i had end stage copd they told me it is not a life sentence like i felt it was.

[sandytarson in reply to sandytarson]

to all you out there keep the faith very severe copd.

[sandytarson in reply to sandytarson]

it is hard to keep your hopes up. i know. but there are things you can do to help your yungs

[sandytarson in reply to sandytarson]

lungs not yungs

[lynnely51 in reply to sandytarson]

sorry I just got this, but you can always email me at [e-mail]. I only check it every few days though. My mom is 82, and quit smoking at 54 and still got COPD with Emphysema. Yes she almost died of pneumonia. Her pulmonologist and cardiologist said she would not leave the hospital. She was hallucinating and in diapers. I fired her pulmonologist and brought in a new one. When he saw her xrays and tests, he told me she would not leave the hospital too, but he was going to try something. He got aggressive with powerful antibiotics and two days later my mom sat up and said "Lynn, I can't believe how good I feel" Don't take their word for it. Get a second opinion. When I take her to the cardiologist and my mom is not looking, the cardiologist looks at me with this shocked look as to say What the hell! She can't believe it. That was in Nov. of 2015. Yes I read an article from a doctor who said he has had many patients with end stage COPD who lived for years, and I have read other people say the same thing, so, it is not necessarily the end. Never think that way, it is also very important to stay positive. New treatment is always popping up, so stay on top of that. I have been interested in the Buteyko method of breathing. Look it up on YouTube. I don't know if anyone on here has tried it. Let me know if you have any other questions. Also keep your weight up, you need it to fight off pneumonia if you get it. My mom was in the hospital for 2 weeks and rehab for two weeks and she lost all her muscle mass. She is back to normal that way now. Email me if I can help you.

[PSchnake]

Hi Naebreath (as is No Breath"?). My name is Patti. Reading your post saddens and worries me. If there were a way to privately message you, I would do that. I can't sleep tonight for some reason and for an unknown reason, the first thing I did was open my email showing your post. Maybe that's why I couldn't sleep.

Everyone on this site has had terrifying moments and periods of loneliness in our sorrow that accompany our mutual diagnosis. It's not only an arena to find answers, but a place to share your feelings.

I do have some questions for you. If you choose to not answer them, I'll understand. In what state do you live? Why do you not have anyone to call on for support? Are you religious in nature?

Please know that I care about you and what you're struggling with on a daily, or perhaps moment to moment, basis. What can I do for you? If it is at all possible within my reach, I will certainly try to help you in your time of need.

Please let us know how you're doing. I'll be happy to be your friend and "talk" with you. I am here for you. We all need someone to listen to us and help us cope.

Friends, Patti

[joyful4u in reply to PSchnake]

Hi Patti, I'm glad you posted this so everyone could see. I'm sure that it'll give hope to more than you'd ever know. This site is a blessing to me & many others. Terri

[PSchnake in reply to joyful4u]

❤️

[Snop67]

I am so sad reading your post! I really wish I could do something for you! Dealing with this must be horrible. Are there any programs that you can reach out to? If so please do it there are good people out there .

[Naebreath]

Thank you, I've tried about everything I can. Continue to do. Appreciate your words.

[joyful4u]

Hi, I'm so sorry that you're struggling so much. I'm glad you joined this site because if you had no support until now, that has just changed. We are all here for you & can feel for you, as many here can identify with you. Your pain is real & we're here to listen & encourage you as you go forward. Please continue to let us know how you're doing. I'll keep you in my prayers. Terri

[Feelingblessed2013]

I am so sorry that you are going through this. I wish I could give you a real hug, but since I can't here is a virtual one ((( O )))

[shadow4me]

You poor thing I cant imagine how much you are suffering ,I have my family I have severe copd but at times even with their support I feel like just giving up .I hate this disease it takes everything away from you xxxxxxxxxxx

[Naebreath in reply to shadow4me]

Thank you, sounds like you know, be well.

[Mimibx3 in reply to Naebreath]

Naebreath...bless you my dear, bless you! It's a difficult disease and I hope and pray you can find comfort...it can't hurt to ask for peace and acceptance, I will ask for it for you too.

Sending you love

[bcat9251]

Naebreath, I am sorry you are feeling so down. I am at or nearing end stage copd and I do understand. It's a disease that many people don't understand and it makes you feel isolated. I hope and pray that you can get some support to help you. You are never alone. Remember, there are people here who know what you are going through and are here to offer support and friendship.

[Naebreath in reply to bcat9251]

Thank you, appreciate your comments, try and be well.

[teresa2268 in reply to bcat9251]

my husband has copd an it is worse.he is at the stage i guess u could say ,where he is coughing till his face is red an passes out for a second. long enough to fall down.an he will not quit smoking.an they will not give him oxygen because he smokes. i am his caregiver an have secluded myself almost as much as him.have any answers or advice.please respond [e-mail]

[lynnely51 in reply to teresa2268]

teresa2268 I know how hard it is to quit smoking because I quit. It will make it easier for him if he does which I know you both know. I don't have it but my mom does. I have quit smoking twice. The first time for 2 years and now it's been a year. I had cold laser to quit smoking. It can cost anywhere from $200.00 to $500.00. There is no withdrawal with it, It's a very relaxing procedure/ not medical and it takes about an hour. Usually you can go back for a booster for free, but you don't need it. It's a pleasant experience, so I went back. It's all over the country now. I do smoke electronic cigarettes and so I am still addicted to nicotine. There is some evidence that can be a problem also, but I can breathe, I am not smoking all those carcinogens. I'm just telling you this incase he just cant quit. I still have a need for the nicotine and I am relieved by the electronic cigarette. I look forward to it just like when I smoked. Its not as great when you start it, but you do finally get perfectly satisfied. I wouldn't mention it at all if he wasn't refusing to quit, but it is a much better option. Like I said, I don't know down the road, but in my opinion and my experience, it's much better. Good luck