I'm just paranoid that the Dr is suspecting crohns but I've got it into my head something more sinister I'm 28. Because he's put "benign" symptoms on the letter to my GP yet he didn't discuss that end with me he was quite rude initially because he said "oh you've been here before and what do we keep telling you, we will have to do the investigation".
Sorry for the essay but iv just had this sprung up on me and I am terrified.
(I'm in the UK)
Written by
Neb93
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Thank you for posting in Colon Cancer Connected. I'm sorry to hear you have these things going on and it's been on and off over the past 10 years.
Have other family members had these same conditions?
A calprotectin level of 623 indicates an inflammatory condition that the doctor says is "quite significant." You mentioned a c-restive protein level of 15. This is all good knowledge which would help your GP layout a path of action for you.
I would highly suggest you work closely with your healthcare team as there are certainly more tests that they should be looking into in order to give you more solid information about what's going on. It looks like that is being done.
The abdominal ultrasound indicates "evidence of fatty liver disease." Your doctor said your "abdominal pain may be due to Crohn's disease." The doctor did some other liver screenings that turned out to be "negative." It looks like you are waiting on getting the colonoscopy. I would only assume taking you off the 2-week wait tracking means your colonoscopy will happen earlier? I would also ask for some clarity about the reference to "she is for further investigations of benign symptoms." Make sure you know what the means.
To make sure you have the whole picture, I'd wait for the results of your colonoscopy. Results of this procedure should open up a more concise path of treatment. Your GP should have clearer information on what the next steps should be.
Know this. You sound like a very persistent person who just wants answers. You deserve that. Wait for that colonoscopy and next steps. Then evaluate your position.
Please try not to focus on "paranoid", "sinister" and "terrified". I know that's better said than done. Put energy into what "investigation" needs to be going on. Get that knowledge.
Good luck and please keep us posted. Your information can help others who may find themselves in similar situation. We'll be thinking of you and hoping for good information comes from the colonoscopy.π
~Tom, GCCA Survivor - Colon Cancer Connected Site Administrator.
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