Follow my blog

[Billys60]

Hi folks.

I have a blog on the McMillan site which is following my journey through Chemotherapy for CLL. I started the treatment a week ago. <p>

This is a link to the blog if anyone is interested.

community.macmillan.org.uk/...

Thanks

[Cllcanada Top Poster CURE Hero]

You say your FCR was fludarabine, chlorambucil and rituxan? Bit unorthodox.

[Billys60]

Got. It wrong it was Fludarabine cyclophosphamide and ritixumab

[HAIRBEAR_UK Founder Admin]

Billys60

Thank you for sharing your very human story with us. I will be following your treatment journey with interest and I am sure many others will be too. I have just posted a comment to your blog. Great to read how your disease is responding so soon.

For those that didn't know, there is an active CLL community group on the Macmillan platform offering a different type of social space it has a softer feel to it. A member described it as "as a soft place to fall" and is a very supportive group at a very human level. community.macmillan.org.uk/...

The Macmillan site is a good place to keep a journal that can benefit the wider community

community.macmillan.org.uk/...

[gingerlovesal]

Hi Billy, would you be willing to share name/institution of your CLL provider in Scotland? We may be moving to your country soon. Thanks

[Billys60 in reply to gingerlovesal]

Hi

The care provider in Scotland is just the NHS. Which where are you possibly moving from

[gingerlovesal in reply to Billys60]

So your actual doc is not consistent? Moving from Switzerland.

[Billys60]

Yes consistent. I see the same consultant at every appointment. Have done for the past 10 years.