Has anyone experienced anxiety while on Venetoclax?

[Tangolover]

I have not seen it listed on side effects.

[Lawand1]

hi, been on it for 2.5 years and can’t say I have. Never seen this as a side effect. Perhaps it’s just you….which is normal and understandable. But be assured, this is a very effective drug. So I encourage you to enjoy what if offers you. Be blessed!

[thb4747]

I’m about to start year 8 of Venetoclax monotherapy and I’m the same as Lawand1. No anxiety whatsoever. I take 200mg daily.

[LeoPa in reply to thb4747]

Isn't V treatment time limited? Did you ever reach uMRD on it?

[Lawand1 in reply to thb4747]

I read your bio, you’re an inspiration! Have you had any challenges with platelets on V? Mines are dripping after 2.5 years

[thb4747 in reply to Lawand1]

I have but then I pretty much always have. In fact the lowest figure in the past 7 years (75) was one week before the trial started. I’ve only had 9 readings above 150 in that time with only 1 being in the 160s.

I’ve had more issues with neutrophils and have injected G-CSF on quite a few occasions. I was also having regular IVIG infusions and in the last 6/months have changed over to weekly sub-cutaneous infusions at home.

I’m actually feeling pretty good right now. Gym twice a week and regular walking to keep fit.

[michaeledward in reply to thb4747]

8 years of venetoclax treatment? I was under the impression that venetoclax treatment length was 2 years. Perhaps I am mistaken.

[michaeledward in reply to michaeledward]

Disregard my question. I now see your explanation below.

[thb4747]

it is normally limited to 2 years but I’m on an extended clinical trial. I’ve been in clinical remission since November 2018. Been on 200mg since then.

[LeoPa in reply to thb4747]

Thank you!

[Adlucy]

When I was on it, I tolerated it very well and had no physical side effects. However, I did find that I was anxious when driving and really didn't want to do it any more. I don't know whether this is age-related or the fact that since lockdown I have not driven much at all. I was talking to another woman at a support group who had the same reaction as me.

[Tangolover in reply to Adlucy]

Thank you for sharing that!