Wonder how common that question is to this group? ... and if you fall into that category what kind of reaction or thoughts came to mind?
Reason I ask is, I “thought” my CLL was maybe a 2 year till diagnosis thing. Then, having multiple General Practician (GP) docs over past 3 decades, I decided to ask them for my past test records, especially any Complete Blood Count (CBC) test results. Bad idea? Well read on...
I started my research journey with doc #3 (going backwards) since doc #2 per past two years were the ones to show me CBC reports n explain them. They acknowledged CBC Irregularities which led to my CLL diagnosis in Sep 2020.
So my doc #3 covered a span of 6 years before docs #2 and I received an envelope full of CBC reports yesterday from #3 doc. Sure as poop ... CBC results for those 6 years were nearly identical as they are now! So that puts me 8 years in W&W mode (at least) versus what I thought was 2 years.
Doc #3 never had given me those CBC results (no I was ignorant to ask, Cus “if” things were ok per physical exam results I was ok with that) nor were my CBC results discussed, the mild but “high” blood markers WBC (White Blood Count), high lymphocytes numbers, etc. He had given me the other physical exam reports )n discussed those results) regarding cholesterol results (which was his wheelhouse specialty) since my family had history of heart disease. I get that and fact my CLL numbers were (and are mild): A-bit high WBC 14 with lymphocytes at 9, but platelets good 265, hemoglobin good 15, MCV good 95 and so on, all good. No big deal to doc#3.
My wife, so smart she is, made comment that “maybe doc #3 didn’t want to say anything about the CBCs since he knew it would only add stress and you’d just be in W&W mode” spot on comment. ... And “maybe” he monitored CBCs seeing the mild bad counts were “flatlining”.
I don’t think I’m going to ask doc #4 who covered the previous 10 years (or ...doc #5, another 20 more years) cus what’s the point ? W&W 8 years, do I need to know if it’s been 18 years? or ... 38 years? It’s not like it’s a Guinness World Record thing to “win”. What would I do with that knowledge besides update my HU profile? Lol.
Anyways, interesting it may be, it changed nothing except now in my tiny brain which is half full with CLL “what the heck” knowledge, there is the known I’ve had it for a longer time than had realized.
Ok, so what? ... just wondering how you out there reacted to new knowledge you’ve had CLL longer (maybe lot longer?) then you had originally known and did you do a “ok, so what”? Or...?
Crazy cancer this baby is.