Just got COVID Vaccination #10.: With the rapid... - CLL Support

CLL Support

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Just got COVID Vaccination #10.

Spark_Plug profile image
Spark_Plug
β€’18 Replies

With the rapid rise of FLiRT making it's way across the Country (U. S.), It seemed a good time to get another. I'm trying to keep it a tri-annual occurrence.

Those 65+ and immunocompromised are eligible for one more dose before next roll out. I got a little push back from the pharmacist today, "You're still all set for now", a little dismissive.

"CLL is an immune disease it's o.k., you do have Pfizer?", I replied. It seemed to settle things.

Remember, according to the CDC, if you state you have moderate to severe immuno-compromise, or through therapy (immuno-suppression) you only have to state so. You do not need a doctor's note, prescription, or documented proof. It may be different in another country research first.

Keep well, be strong!πŸ™‚

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AussieNeil profile image
AussieNeilPartnerAdministrator

I replied yesterday about how a study into long COVID, or post-acute sequelae of COVID-19 (PASC), showed that Long COVID Risk Has Fallen, Largely Attributable to Vaccine Rollout

β€” However, metabolic and gastrointestinal sequelae increased among the unvaccinated

medpagetoday.com/infectious...

healthunlocked.com/cllsuppo...

"The population consisted primarily of older white male U.S. veterans.", so while not a study of immunocompromised folk, let alone specifically those with CLL, it does reflect our age grouping for this community and our partners. Also, the male:female ratio for those with CLL is around 3:2.

From the Medpage article;

"What are the messages from this study?" Rosen queried. "First, vaccinations can prevent many but not all cases of long COVID. Second, viral variants influence the risk of PASC."

Researchers also looked to see if individual health outcomes associated with long COVID had changed over time. They analyzed rates of cardiovascular, coagulation and hematologic, pulmonary, neurologic, metabolic, gastrointestinal, mental health, kidney, musculoskeletal, and fatigue disease categories. Although there was an overall decline in many sequelae associated with long COVID, the incidence for gastrointestinal, metabolic, and musculoskeletal disorders increased during the Omicron era among unvaccinated individuals.

"Long COVID in the pre-Delta and Delta era was actually different than long COVID that's happening in the Omicron era," Al-Aly said. "That tells us that not only is the risk quantitatively changing over time, but also that the disease itself has its own fingerprint -- it's not the same disease."

"The study suggests that new cases of PASC may continue unabated, owing to a potentially greater prevalence of metabolic dysfunction and its associated coexisting conditions among persons infected during the Omicron era," Rosen wrote. "Taken together, changes in the clinical presentation of long COVID are a function of 'points in time' and must be considered in any future trial or study design, as well as in clinical assessments."

Researchers analyzed health records of 441,583 veterans who were diagnosed with COVID-19 infection between March 2020 and the end of January 2022 and also included over 4.7 million non-infected controls. The study included five cohorts that included unvaccinated people with COVID-19 infected with the original strain in 2020 (n=206,011), the Delta variant in 2021 (n=54,002), and the Omicron variant in 2022 (n=40,367), and vaccinated people infected with the Delta variant (n=56,260) or the Omicron variant (n=84,943).

Neil

AussieNeil profile image
AussieNeilPartnerAdministrator in reply to AussieNeil

Long COVID puzzle pieces are falling into place – the picture is unsettling

theconversation.com/long-co...

- How long COVID affects the body

- A long road ahead

- An ongoing threat

Despite overwhelming evidence of the wide-ranging risks of COVID-19, a great deal of messaging suggests that it is no longer a threat to the public. Although there is no empirical evidence to back this up, this misinformation has permeated the public narrative.

The data, however, tells a different story.

COVID-19 infections continue to outnumber flu cases and lead to more hospitalization and death than the flu. COVID-19 also leads to more serious long-term health problems. Trivializing COVID-19 as an inconsequential cold or equating it with the flu does not align with reality.

Neil

Spark_Plug profile image
Spark_Plug in reply to AussieNeil

I saw the most ridiculous comment the other day. To paraphrase, the implication was because the vaccinations are still being offered, they're not working πŸ™„.

The disconnect is phenomenal in the sense that I'm surprised the social sciences aren't all over this.

It borders on the incomprehensible to me.

Skyshark profile image
Skyshark in reply to Spark_Plug

Maybe there's something in the food or water.

US UK McD's fries
Amberesque profile image
Amberesque

I'm in Canada and I got every vaccine I was eligible for up until this spring (they give them twice a year here, spring and fall). I skipped it thinking I'd be okay considering it's summer. Wrong. Previously a "no-vid," I'm now on day 3 of a wicked covid infection and I wouldn't wish this on anyone.

Spark_Plug profile image
Spark_Plug in reply to Amberesque

Hope you recoup fully and quickly.πŸ™‚πŸ’

Amberesque profile image
Amberesque in reply to Spark_Plug

Thank you! πŸ™

Tortola2019 profile image
Tortola2019 in reply to Amberesque

Begged my Dutch doctors to get me another booster before travelling, but they said "not possible" and to wait for the new rollout for immunocompromised persons starting September 1st. I'm now on day 4 with COVID...wish I had been able to continue boosters every 3-4 months! After I recover, I'll be looking for regular boosters from other countries if the Dutch won't allow it.

anongirll1927 profile image
anongirll1927

Good to hear! My loved one was recently diagnosed with CLL. Asymptomatic currently, although they just caught a cold and the immunocompromised status is really shining. That said, we are thinking about going on a trip that was planned pre-diagnosis (depending on what their doctor says). They got their last COVID booster in the fall. Do you think they’re eligible for another one?? I’m worried about them getting sick on our trip BUT I’m hopeful that if they can get boosted again, that and the immunity from whatever virus they just got would keep them healthy. I will be traveling with them, but will be just-barely past the 90 day mark after getting COVID back in May, so I’m hopeful my immune system will still be at least somewhat ready to fight exposure.

anongirll1927 profile image
anongirll1927 in reply to anongirll1927

Just to clarify, the trip is in a few weeks time!

AussieNeil profile image
AussieNeilPartnerAdministrator in reply to anongirll1927

The Australian COVID-19 vaccination guidelines for immunocompromised folk acknowledge the importance of having a booster prior to overseas travel, but without giving any guidance with respect to whether that can be done ahead of the recommended 6 monthly booster interval. You haven't shared where you live, though I assume Canada or the USA from your mention of Fall not Autumn, so all I can suggest is that you check with local vaccination providers. It takes around a week for memory B and T cells to respond to boosters, so your timing is good.

Make certain you pack plenty of N95/FFP2 respirators for use while in close proximity to others, plus RAT/LFT testers.

Safe travelling!

Neil

Spark_Plug profile image
Spark_Plug in reply to anongirll1927

CDC recommendation 3 months after exposure πŸ‘.

skipro profile image
skipro

Thx for your input

Do you know which vaccine covers current variants?

My docs told me to wait til Fall??? Not sure why especially in light of huge waste water spike in my area??

Spark_Plug profile image
Spark_Plug in reply to skipro

I could be mistaken but I think that it covers XXB and the one following XXB. Timing is the important step my vaccination was long in the tooth, so I opted to top up, get the new flu prep rolling out in Oct., them get the new COVID Vaccination in Nov.

I aim for every four months that's when I see spiking and my personal time in the exposure field overlapping.πŸ™‚

skipro profile image
skipro in reply to Spark_Plug

Great strategy

Kiwidi profile image
Kiwidi

Sorry to be so ignorant but what is FLiRT?

Skyshark profile image
Skyshark in reply to Kiwidi

It's all the latest variants of COVID.

bbc.co.uk/news/articles/ck5...

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