I am pleased to post that it has been 8 years since I started the captivate trial, and it has gone very well so far. This is even more remarkable since I was/ am 17 P deleted with large lymph nodes a complex karyotype to start. Trisomy 12 as well to start.
I have to thank CLL Society for a great education to help me make the right decisions. I also have to thank Ucsd for great care. LLS as well.
The site staff generally don't know who has the placebo. A site is sent the randomized packages labelled for each patient, and then just dispense them to the patients. That's the main point behind a placebo trial, no one knows who has the drug until the study is processing data/reporting results.
Even forIV meds. I remember one study testing phenobarbital in neonates, we were instructed to poke a needle in the plain IV/placebo bags ends similar to if we injected the drug, so the docs & nurses on the floor could not tell by looking if the IV contained the drug or not.
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Captivate Trial MRD status
Dr. John Allan - Chronic Lymphocytic Leukemia (CLL) Patients @Undetectable Measurable Residual Disease (MRD) after Ibrutinib Plus Venetoclax
Right decision? FCR vs. trial 
Dr. Fauci shares his recommendation that immunosuppressed patients with blood cancers, like us, get the vaccine, because some immunity is be
