Retuximab

[flippingnora1]

I have had CLL for nearly 12 years. When I was first diagnosed I had chemotherpy for 4 months, then I went on Ibrutinib which gave me heart palpitations, but seemed to do the trick as Ihave been in remission up until this year. I now have swollen glands all over especially my tonsils which I am having removed. Then I am being prescribed Retuximab. Has anyone taken this drug, and what are the consequences?

[lankisterguy Volunteer]

Hi flippimgnora1,

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We have lots of reading for you- 2,883 past postings on Rituximab here: healthunlocked.com/cllsuppo...

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Len

[flippingnora1 in reply to lankisterguy]

Thank you everyone, feel better informed now.

[Floxxy]

I was diagnosed 6 years ago. I had FCR as a first line treatment a year later. My lymph nodes became enlarged a year ago so started Venetoclax and Rituximab in March. I was generally well but suffered from exhaustion. Also, my neutroneutrophils are extremely low and I have to have Filgrastim injections to counteract this. My Haematologist is happy with my progress. I completed the Rituximab a month ago but continue with the Venetoclax for another 14 months. I generally feel absolutely fine now and have more energy. x

[Nucleusman]

had it twice intravenously no problems

[Tangolover]

I took it intravenously for 6 monthly treatments. Just nausea during the treatment but found that Ativan reduced nausea. Best wishes to you!

[flippingnora1 in reply to Tangolover]

Thank you

[Cllsller]

If you mean rituxan, yes Iwas on that . It worked really well until I developed interstitial lung disease. There were no side effects and I felt fine. I would just mentionlung issues to the doctor. I wish you the best.

[flippingnora1]

Thanks again to all your replies. Feel better for them.

[Jacksc06]

Hi. I had 4 cycles of Bendamustine and Rituximab afew years back and recently had 4 cycles of Rituximab recently. On both occasions I had fatigue which was debilitating. Other than that just the usual aches and pains. Best wishes.