Hi, I am a 58 yr old from UK. I was diagnosed 3 1/2yrs ago and have been W/W since then. Last October my lymph nodes in neck got enlarged and have got progressively larger since then. I have had CT scan to prove this and my consultant who is on research board for Haematology has suggested I apply for FLAIR trial. I am scared to death after reading information sent to me from research nurses, I appreciate that they have to tell you about every side effect but they sound awful. I am also scared of the bone marrow sample (did I mention I am just a wimp!) I have read horror stories. This community has saved me to a certain degree, I felt totally alone but have learnt so much from you all for which I say thanks! My consultant has agreed to monitor me for a further three months and in that time I intend to get fit and healthy as I think the fitter you are the more able to deal with the side effects. But then I start thinking should I go ahead as soon as I can in case my lymph nodes get bigger.
I would welcome any comments please.