My name I use is Corkrissa , I’m female 79 dx with cll after having breast cancer surgery in 2010 age 66. I’m on imbruvica since 2017 numbers are good have a hematologist/oncologist , dr Sakr.
I didn’t know how to ask a question. I have followed Healthunlocked since dx. I am in awe of the knowledge you and AussieNeil and others about CLl. I don’t understand a lot of the clinical terms but enjoy reading answers to many questions. Hoping you or others can help me with a problem I’m having
I was recently hospitalized in June for pneumonia after 5 weeks of being sick at home , 2 trips to er and sent home. I noticed I have vertical lines on a few of my fingernails and researched for answers , only to read this is nail psoriasis. I have not been dx with this so don’t understand what’s happening. my nails won’t grow they split, have double layers on a couple, soft, and ragged edges that forces me to carry a nail file. I would get cuts on sides of fingers that would hurt had to put liquid bandage on. I use gloves when ever do dishes or cleaning., Now those problems have subsided , I have lotion in literally every room in the house.. I tried so many different nail products, oils , and lotions galore . I took collagen but discontinued didn’t help I take 2 Biotin 5,000 mcg daily. Don’t think covid and the disinfectants used has helped. I had acrylic nails for 20 yrs , nails looked great but was told by my dr it wasn’t a good idea to continue because of the chance of getting a ln infection. Was thinking to have a very thin layer of acrylic for a while but I think it may do more damage. My question is : is this due to CLL meds or ?? This isn’t vanity …. It HURTS . I’m very Blessed My CLL numbers are under control feel good my energy is good. I Help to care for my beautiful 2yr old great grandson, Joshua, came at a sad time for my family. We lost my husband , Alex , of 58 yrs. Joshua has brought many happy times to this Gram.
hope someone has an answer for me
Love and Blessings to all of you. Live life to the fullest. Make sure you tell the people in your life you love them
Love
Anna
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Corkyrissa
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Anna, most likely your splitting fingernails are due to a known off-target effect of Imbruvica.
I can certainly sympathize with you because I suffer from exactly what you have described, having been on Imbruvica since 2015. A few years ago I started getting acrylic nails, but then suffered from a horrible nail infection that led to complete loss of one of my nails. It grew back over a period of months, but definitely put an end to my use of acrylic nails!
I too had the same problem while I was on full dosage of Ibrutinib. You are correct… it is not vanity, they hurt! I used to have to put liquid glue and a tiny pieces of scotch tape on nail splits to keep them from going down into the quick. The Biotin helped but it can sometimes take up to 2 months for it to start working. The other things you are doing might help. Sorry I can’t help more. And so sorry for your loss. I cannot imagine losing my husband. Thoughts and prayers for you. So glad you have Joshua!
I had same problem with nails but am being treated with V&O, never was on ibrutinib. I solved problem with keeping nails cut short and covering split with "harder than nails" polish. I also started taking Biotin daily. Took some time but I no longer have split and flaking nails. Blessings.
I also suffer splitting nails. And while I'm on V+O, the condition began years before treatment, and diagnosis for that matter. I do wish I had gotten a blood test when I noticed my nails developing deep ridges and started splitting. Might have coincided with CLL onset. Anyhow, curiously, it's only my ring finger fingernails and not the others. I haven't found a solution, so I don't have much advice, but I am interested in this thread (!) Hope you find answers
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